Center for Global Research Data

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Author Archives: Info Account

Vivli announced that it had reached a new milestone with 100 public disclosures, including many from peer-reviewed journal publications, has just been published using data requested via the Vivli platform. We are so pleased that we have reached this milestone during the month of our four-year anniversary,” said Rebecca Li, Executive Director. “So much of…

Vivli welcomes our newest partner platform as a member, the NIH Helping to End Addiction Long-term® Initiative, or NIH HEAL Initiative®, an aggressive, trans-agency effort to speed scientific solutions to stem the national opioid public health crisis. “We are delighted to include the NIH HEAL Initiative as a member of Vivli,” said Rebecca Li, Vivli…

The NIH asked for public input on a NIH data management and sharing policy proposal. Full details on the DRAFT NIH Policy for Data Management and Sharing and the Supplemental DRAFT guidance can be found here. Below are the comments that Vivli submitted. As the world’s largest funder of research, NIH has a major leadership…

Challenges and a Way Forward in Sharing Clinical Trial Data: A Workshop on November 18-19, 2019 Vivli Executive Director, Rebecca Li, will speak about the Vivli platform on the first day and Vivli founder and technical lead, Ida Sim, will moderate a session on the second day about Overcoming Usability and Sustainability Challenges. The workshop…

Few things are more frustrating than wasted time. The Vivli team wants to help you make the most of your valuable time, and to help make sure that your data request has the best possible chance for success. While access to data is a decision made by our data contributors (see our Members Page for…

Vivli, the Multi-Regional Clinical Trials Center (MRCT Center) and Association of American Medical Colleges (AAMC) present a discussion on methodologies for appropriating credit in data sharing. Dr. Barbara Bierer, MRCT Center Faculty Director, and Heather Pierce, Senior Director of Science Policy for AAMC share how purpose-driven data sharing both enhances scientific discovery and ensures data…

Vivli Executive Director Rebecca Li and Frank Rockhold, Vivli Special Advisor and Professor of Bioinformatics at Duke Clinical Research Institution, will present at the NIH Grand Rounds on September 27 from 1-2pm EST on Preparing for Clinical Trial Data Sharing and Re-use: The New Reality for Researchers. Join the livestream

Vivli Executive Director Rebecca will present at the Drug Information Association’s (DIA) Future of Evidence Workshop session on Real World Evidence (RWE), Data Sharing and Data Transparency. Dr. Li’s presentation on “Finding New Solutions to Problems and Concerns in Clinical Data Sharing – Outcomes from Datathon” will speak on October 25. The Switzerland based event…

“We are delighted to have Johnson & Johnson join Vivli as a member,” said Rebecca Li, Vivli Executive Director. “This partnership will drive science forward by enabling the combination of J&J data with sources available from Vivli’s other member organizations.” Read more about the partnership in this post by Joanne Waldstreicher, Chief Medical Officer at…

The Vivli Annual Meeting event on Wednesday, September 18, 2019 was recorded. For those who are unable to attend the meeting in person, you can view the proceedings. Annual Meeting Agenda Welcome remarks Vivli Update for 2019 and Vision for 2020 Working lunch Invited Speaker: Informed consent and secondary use of data for data sharing – David…

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