Center for Global Research Data

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The Vivli Annual Meeting event on Wednesday, September 18, 2019 was recorded. For those who are unable to attend the meeting in person, you can view the proceedings. Annual Meeting Agenda Welcome remarks Vivli Update for 2019 and Vision for 2020 Working lunch Invited Speaker: Informed consent and secondary use of data for data sharing – David…

Dr. Rebecca Li will discuss how Vivli used synthetic datasets as part of its data challenge with Microsoft on a webinar entitled An Introduction to Synthetic Clinical Trial Data. The webinar will be on October 4 at 11am-12pm EDT and is hosted by Replica Analytics. Sign up to the webinar today to find more about…

“Working Together to Transform Data Sharing”  The Vivli Annual Meeting event will be held at the DoubleTree by Hilton Hotel Bethesda. The event is free but registration is mandatory, please register as soon as possible as space is limited. REGISTER TODAY Date: Wednesday, September 18, 2019.  11:30 – 4:00 pm EST. Location: DoubleTree Hilton – 8120 Wisconsin Avenue. Bethesda, MD…

  CDISC and Vivli are presenting an exclusive conversation with Vivli Executive Director Dr. Rebecca Li, UCSF professor and Vivli Co-Founder Dr. Ida Sim, and CDISC President and CEO David R. Bobbitt who will discuss how data sharing and data standardization go hand-in-hand in the quest to move scientific discovery forward. View a recording of the…

Vivli Executive Director Rebecca to will speak at the Office of Human Research Protection  (OHRP) 2019 Exploratory Workshop Privacy & Health Research in a Data-Driven World on September 19. The Bethesda, Maryland, event runs from 8.15am-4.15pm EDT and will have a live webcast. The workshop agenda includes three separate sessions related to the theme of…

Long-term cancer survivor and patient advocate Jane Perlmutter tells us why data sharing is so important for people with rare diseases. Q: Why should we share data from clinical trials?  Jane Perlmutter: I spent half my life as a cancer survivor. At first, I thought I wouldn’t survive it–and I’ve had three more cancer diagnoses…

Vivli board member Mark Barnes, JD, LLM will speak on a panel entitled “Sharing Individual Participant Data (IPD) from Clinical Trials and Personal Information Protection” on November 11 at the 16th DIA Japan Annual Meeting 2019 in Tokyo. Find out more.  

Vivli is always looking to improve its data sharing platform and the support it provides to its users. We are asking all platform users to help us by taking our brief survey today. We will use the results of the survey to continue to develop our platform and user support. Thank you in advance for…

Lilly will share patient-level clinical study data “We are thrilled to welcome Lilly as a member of Vivli and to be able to list their studies on the platform,” said Rebecca Li, Vivli Executive Director. Lilly is a global health care leader that unites caring with discovery to create medicines that make life better for…

Vivli has been awarded Soc 2, Type 2 compliance by an independent auditor.  Service Organization Control 2, or SOC 2 compliance is a component of the American Institute of CPAs (AICPA)’sService Organization Control reporting platform. SOC 2 reports on controls that directly relate to security, availability, processing integrity, confidentiality, and privacy of data. In addition, the Vivli platform is built entirely…

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