Dear Friends,
As we close out 2022, the role that data sharing plays in furthering science has never been clearer. I am humbled to see how so many researchers are using Vivli to extract important new insights from the raw data that underpins clinical trials. Their discoveries are shaping new patient decision-making tools, clinical guidelines, trial protocols and other solutions that have a real-world impact.
Just this year, we had more than 84 public disclosures from investigators across the globe who are using data on the Vivli platform to answer new research questions. To date, we’ve approved more than 300 proposals that span a breadth of health conditions, from diseases that are the leading causes of death such as cancer and cardiovascular disease, to those that are increasingly drawing attention after recent national and global crises, such as mental health and infectious diseases, including coronavirus.
Our impact wouldn’t be possible without the companies and institutions that have stepped up to share their data and put their trust in Vivli. We now have almost 7,000 trials in our inventory, contributed by our 45 members. This year, we welcomed Bayer, Ipsen, Sanofi and Sunovion SMP as members, as well as the NIH HEAL Initiative and the National Institute of Diabetes and Digestive and Kidney Disease Central Repository (NIDDK CR-R4R). We also launched new collaborations with The Leona M. and Harry B. Helmsley Charitable Trust to host a data challenge with the aim to drive type 1 diabetes and exercise data to solutions, as well as the NIH Office of Data Science Strategy to improve access and discoverability of NIH-funded data.
2023 will mark five years since the launch of Vivli. As we move towards this milestone, we look forward to welcoming even more researchers to contribute data into our platform as the NIH Data Management and Sharing Policy comes into effect, and to hosting new data challenges and forming novel partnerships to stimulate even more research that maximizes the value of clinical trial data.
As I reflect on how far we’ve come and what lies ahead, I’m so grateful for partners and leaders like you. Thank you for all you do.
REBECCA LI,
EXECUTIVE DIRECTOR, VIVLI