Center for Global Research Data

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June 2, 2022 | Upcoming Vivli Webinar: How Vivli Promotes Discoverability of Partner Platforms and Repositories
Vivli will share how we work with our platform partners, including NIH Domain Repository partners, to enhance discoverability of their data. Vivli has recently been named a Generalist Repository as part of the NIH GREI initiative. A primary objective of the GREI initiative is to supplement the NIH domain-specific data repositories in their data sharing....  > MORE
May 27, 2022 | Vivli Executive Director Dr. Rebecca Li Presenting at PHUSE Data Transparency Summer 2022 Event
Vivli’s Executive Director, Dr. Rebecca Li, will be presenting at the PHUSE Data Transparency Summer Event on June 28-30 alongside co-author Rebecca Sudlow, Roche. They will be presenting their abstract titled, “Accelerated sharing of COVID-19 Trial data via the Vivli Global Data Sharing Platform.” Dr. Li will be speaking at the Wednesday, June 29, session....  > MORE
May 9, 2022 | Vivli to participate in NIH HEAL program webinar
Vivli’s Rebecca Li, Executive Director, and Julie Wood, Senior Director, will be featured as panelists for Open House for HEAL Data: Discussions with HEAL-Recommended Repositories on Thursday, May 19th from 1:00-2:00pm ET. The NIH HEAL Initiative® aims to create a novel web platform connecting data from existing repositories to allow researchers to share, find, and...  > MORE
November 19, 2021 | Vivli Senior Director Julie Wood to Speak at Future-Proof Your Clinical Data Disclosure, Transparency and Plain Language Summaries Event
Clinical Trials- Informa Connect is hosting a hybrid event, “Future-Proof Your Clinical Data Disclosure, Transparency and Plain Language Summaries,” in June 2022. They will be featuring Vivli’s Senior Director, Julie Wood, in their series on Data Sharing Challenges in the presentation, “CASE STUDY: Sharing of Covid-19 Trials on Data Sharing Platforms.” Julie Wood – Director...  > MORE
November 4, 2021 | View the Recording of Vivli’s 2021 Annual Meeting
“Creating Value by Working Together” Vivli’s 2021 Annual Meeting was held on November 3rd. This meeting served as a chance to allow researchers, data contributors, and funders to discuss data sharing and its importance for furthering scientific discoveries. View the Recording View the Presentation Agenda Welcome remarks Vivli Update for 2021, Rebecca Li, Executive Director,...  > MORE
September 17, 2021 | Vivli Executive Director Dr. Rebecca Li to speak at Ropes & Gray and Mass Insight Global Partnerships – a Data Science Webinar
Ropes & Gray and Mass Insight Global Partnerships will be featuring Vivli’s Executive Director, Dr. Rebecca Li, on their upcoming webinar, “Accelerating Next Generation Developments in Cancer Care: A Collaborative Agenda for Data Innovations and Policy.” Ropes & Gray and Mass Insight Global Partnerships aim to highlight the impact data sharing has on scientific developments, specifically...  > MORE
June 2, 2021 | Upcoming Vivli Webinar: Sharing Academic Clinical Research Data
Sharing Academic Clinical Research Data: Top Academic Administrators discuss why and how institutions can provide support This webinar provides an introduction to why data from academic clinical research should be shared and is aimed at academic trial teams and staff. The panelists will take part in a free-flowing conversation and Q&A to share their experiences...  > MORE
May 4, 2021 | Vivli Executive Director Dr. Rebecca Li to speak at Front Line Genomics Webinar
Front Line Genomics will be featuring Vivli’s Executive Director, Dr. Rebecca Li, in their webinar series COVID & Genomics ONLINE, on Wednesday May 5th in the webinar, “COVID-19 Data Sharing.” Front Line Genomics is a genomics-focused media company, with a social mission to deliver the benefits of genomics to patients faster. In this webinar, they...  > MORE
April 8, 2021 | Vivli Executive Director Dr. Rebecca Li to speak at HRB-Trials Methodology Research Network Webinar
Health Research Board Trials Methodology Research Network (HRB TMRN) will be featuring Vivli’s Executive Director, Dr. Rebecca Li, on their upcoming webinar, “Implementation of Data Sharing platforms and How Researchers are Utilizing these Platforms to Further their Research.” The HRB-Trials Methodology Research Network (HRB-TMRN) is a collaborative initiative between a number of Irish and international...  > MORE
March 4, 2021 | Vivli’s Executive Director and Director of Strategy and Operations to present at Clinical Data Disclosure, Transparency and Plain Language Summaries Virtual Conference
InformaConnect will be combining their EU and US events into one global virtual event this year: the Clinical Data Disclosure, Transparency & Plain Language Summaries, May 10th – May 12th. Participants can expect to learn from thought-leaders and innovators across the industry in this three-day event that covers topics: Global clinical transparency regulations and data...  > MORE
February 25, 2021 | Vivli to host webinar: Clinical Trial Data Sharing and Machine Learning Research
Join Vivli for a webinar to learn about how Machine Learning (ML) research approaches may be used in the context of clinical data re-use. These approaches raise important questions and opportunities for data sharing. Panelists will provide an overview of machine learning including case studies from Vivli (a global data sharing and analytics platform) where...  > MORE
January 25, 2021 | Vivli Co-founder Dr. Ida Sim to speak at CBMRT’s Transparency Summit Series
Center for Biomedical Research Transparency (CBMRT) is hosting its fourth annual global summit series with the intention to engage a diverse group of participants with a passion for increasing transparency in research practices. CBMRT will host a virtual Summit series with short sessions scheduled for February 26, March 16 and March 26. Participants can expect...  > MORE
January 19, 2021 | MRCT Center and Vivli to host virtual Japan-based Roundtable Meeting
The MRCT Center and Vivli will host a virtual roundtable meeting for our stakeholders and members based in Japan. Meeting topics will include: • Diversity in Clinical Trials, • Approaches to Data Sharing, and • Synthetic Data – Patient Privacy and Other Use Cases Following presentations, Vivli and MRCT Center teams will be available for...  > MORE
December 18, 2020 | Vivli Executive Director Rebecca Li to Present at PHUSE Data Transparency Winter Meeting
Vivli Executive Director, Rebecca Li, will join Critical Path Institute’s Jane Larkindale and Debra Miller from CureDuchenne for a session on Data Sharing of Rare Disease Data – Challenges and Rewards at the PHUSE Data Transparency Winter Meeting. This live presentation can be viewed on Tuesday 19th January 2021 between 15:00–17:30 GMT (10:00 am –...  > MORE
November 25, 2020 | Vivli’s Dr. Ida Sim to lead dkNET webinar entitled “Vivli: A Global Clinical Trials Data Sharing Platform”
Vivli Co-Founder Dr. Ida Sim will lead a dkNET webinar entitled “Vivli: A Global Clinical Trials Data Sharing Platform”. dkNET is a search portal that helps researchers find research resources relevant to their research and keep up to date on new tools, services and mandates to support robust and reproducible science. In this webinar, Dr....  > MORE
November 11, 2020 | View the Recording of Vivli’s 2020 Annual Meeting
“Vivli Global Researchers and Key Stakeholders – Creating Impact” On November 10th, we gathered for a lively discussion as part of our 2020 Annual Meeting. The meeting created a dialogue between researchers and data contributors about data sharing and what can be done to further increase scientific knowledge in future. VIEW THE RECORDING Agenda Welcome...  > MORE
October 8, 2020 | View the Recording of Vivli’s 2020 Annual Meeting
“Vivli Global Researchers and Key Stakeholders – Creating Impact” On November 10th, we gathered for a lively discussion as part of our 2020 Annual Meeting. The meeting created a dialogue between researchers and data contributors about data sharing and what can be done to further increase scientific knowledge in future. VIEW THE RECORDING Agenda Welcome...  > MORE
October 7, 2020 | Vivli Executive Director to take part in panel at Northeastern University CLIC Annual Conference
Vivli Executive Director, Rebecca Li, will take part in a panel discussion next week as part of Northeastern University’s Center for Law, Innovation and Creativity Annual Conference. The virtual conference, entitled This is What Democracy Looks Like – Exploring the Future of Governance Through Intellectual Property and Technology Regulation, will be held on Friday, October 16th...  > MORE
September 16, 2020 | Vivli team member to present at EMWA 2020 Symposium
Vivli’s Director of Strategy and Operations, Julie Wood, will be presenting at the 2020 European Medical Writers Association 2020 Virtual Symposium on 6 November 2020. The event’s theme is Research Integrity & The Medical Communicator: What We Do When Know One is Watching. Wood’s talk is entitled Responsible Data-Sharing to Improve Research Integrity. View the full...  > MORE
August 6, 2020 | Synthetic Data Webinar: How to preserve privacy of participants when sharing clinical data
September 3 at 11AM ET This 60-minute webinar will explore the emergence of synthetic data, a privacy preservation approach to protect individual patient data. Top experts will explain what synthetic data is, when and how to deploy this approach and share case studies about the successful utilization of using synthetic data and future applications of...  > MORE
August 3, 2020 | Vivli Executive Director to take part in panel at Duke-FDA event on rare diseases and data sharing
Vivli Executive Director, Rebecca Li, will take part in a panel discussion as part of Data Sharing to Accelerate Therapeutic Development for Rare Diseases hosted by Duke and the FDA. Her session will focus on platform analytics tools to support data sharing and drug development for rare diseases. The Duke-Margolis Center for Health Policy, through...  > MORE
April 21, 2020 | Ida Sim to present at NIH webinar for COVID-19 Data Sharing
Vivli’s co-founder Ida Sim to speak at a webinar hosted by the National Library of Medicine (NLM) at the National Institutes of Health (NIH) for researchers to learn how to share, discover, and cite COVID-19 data and code in generalist repositories. Dr. Sim will speak to Vivli’s involvement in supporting discoverability and reusability of COVID-19...  > MORE
March 9, 2020 | Webinar: Data Sharing and Data Anonymization–the Vivli-Privacy Analytics Partnership
Join Vivli and Privacy Analytics for a discussion of how both organizations help data contributors to share their data securely and protect patient’s privacy. The webinar will include discussions about the different approaches to anonymization and the value of a risk-based, quantitative anonymization approach. Learn more about how together we are building research communities to...  > MORE
January 29, 2020 | Future Directions: Real-World Data (RWD), Real-World Evidence (RWE) and Clinical Trials
VIEW HERE Join Vivli for a webinar discussing the differences between Real-World Data (RWD) and Real-World Evidence (RWE), and clinical trials. Different types of study designs can help answer different questions and this webinar will explore when these different approaches are deployed. The panelists will provide an overview of the RWD and RWE landscape, the...  > MORE
September 30, 2019 | Credit for Data Sharing Webinar
Vivli, the Multi-Regional Clinical Trials Center (MRCT Center) and Association of American Medical Colleges (AAMC) present a discussion on methodologies for appropriating credit in data sharing. Dr. Barbara Bierer, MRCT Center Faculty Director, and Heather Pierce, Senior Director of Science Policy for AAMC share how purpose-driven data sharing both enhances scientific discovery and ensures data...  > MORE
September 24, 2019 | Vivli Executive Director and Special Advisor presenting at NIH Grand Rounds
Vivli Executive Director Rebecca Li and Frank Rockhold, Vivli Special Advisor and Professor of Bioinformatics at Duke Clinical Research Institution, will present at the NIH Grand Rounds on September 27 from 1-2pm EST on Preparing for Clinical Trial Data Sharing and Re-use: The New Reality for Researchers. Join the livestream  > MORE
September 20, 2019 | Li discusses datathon outcomes at RWE workshop
Vivli Executive Director Rebecca will present at the Drug Information Association’s (DIA) Future of Evidence Workshop session on Real World Evidence (RWE), Data Sharing and Data Transparency. Dr. Li’s presentation on “Finding New Solutions to Problems and Concerns in Clinical Data Sharing – Outcomes from Datathon” will speak on October 25. The Switzerland based event...  > MORE
September 11, 2019 | Vivli Executive Director to Share Experience with Synthetic Data
Dr. Rebecca Li will discuss how Vivli used synthetic datasets as part of its data challenge with Microsoft on a webinar entitled An Introduction to Synthetic Clinical Trial Data. The webinar will be on October 4 at 11am-12pm EDT and is hosted by Replica Analytics. Sign up to the webinar today to find more about...  > MORE
September 11, 2019 | Register for Vivli’s Annual Meeting on September 18
“Working Together to Transform Data Sharing”  The Vivli Annual Meeting event will be held at the DoubleTree by Hilton Hotel Bethesda. The event is free but registration is mandatory, please register as soon as possible as space is limited. REGISTER TODAY Date: Wednesday, September 18, 2019.  11:30 – 4:00 pm EST. Location: DoubleTree Hilton – 8120 Wisconsin Avenue. Bethesda, MD...  > MORE
September 11, 2019 | Joint Vivli and CDISC webinar: Why Data Sharing and Data Standardization Matters
  CDISC and Vivli are presenting an exclusive conversation with Vivli Executive Director Dr. Rebecca Li, UCSF professor and Vivli Co-Founder Dr. Ida Sim, and CDISC President and CEO David R. Bobbitt who will discuss how data sharing and data standardization go hand-in-hand in the quest to move scientific discovery forward. View a recording of the...  > MORE
September 11, 2019 | Rebecca Li to present at the OHRP Exploratory Workshop
Vivli Executive Director Rebecca to will speak at the Office of Human Research Protection  (OHRP) 2019 Exploratory Workshop Privacy & Health Research in a Data-Driven World on September 19. The Bethesda, Maryland, event runs from 8.15am-4.15pm EDT and will have a live webcast. The workshop agenda includes three separate sessions related to the theme of...  > MORE
June 21, 2019 | Winners announced for Vivli Microsoft Data Challenge
More than 60 participants forming 11 teams, took part in the first Vivli Microsoft Data Challenge today at District Hall in Boston. Participants were from universities including Harvard, Northeastern, Brown, and Boston as well as nearby hospitals, pharmaceutical, biotech and software companies. The data challenge focused on finding innovative solutions for how to safeguard participant...  > MORE
March 26, 2019 | Vivli Roundtable in Japan: One Year On: GDPR and Its Implications for Data Disclosure and Data Sharing  
Vivli will host roundtable discussions under the theme One Year On: GDPR and its Implications for Data Disclosure and Data Sharing. The meeting, scheduled for May 13, in Tokyo, Japan, will include discussion with experts in privacy and transparency of clinical trials.    Speakers at the event include:   Mark Barnes, Partner, JD, Ropes and Gray  Thomas Wicks, Chief Strategy Officer, TrialScope  Julie Wood, Director...  > MORE