Vivli Executive Director, Rebecca Li, will join Critical Path Institute’s Jane Larkindale and Debra Miller from CureDuchenne for a session on Data Sharing of Rare Disease Data – Challenges and Rewards at the PHUSE Data Transparency Winter Meeting.

This live presentation can be viewed on Tuesday 19th January 2021 between 15:00–17:30 GMT (10:00 am – 12:30 pm EST). Attendees will have the opportunity to listen to three live presentations, and then participate in a joint panel discussion/Q&A session based on the content from the day.