Vivli brings together a broad, diverse community of stakeholders with a shared goal: to advance human health through the insights and discoveries gained by sharing and analyzing data. Vivli acts as a neutral broker between data contributor, data user, and the wider data sharing community, and is ideally situated to reflect and include a variety of important perspectives. Below, you can read the statements of many Vivli supporters, in their own words:
Statements from Vivli Supporters:
The Bill & Melinda Gates Foundation
“We believe that the tools and discoveries capable of helping us tackle the world’s most pressing challenges – from age-old diseases like malaria to newer threats like drug-resistant superbugs – can only be realized through innovative thinking and global collaboration. Open access to data is critical for both of these things. This is why we are committed to increasing the impact of the research we fund so that it is open and accessible to all through platforms like the one developed by Vivli.” – Steven Kern, Ph.D., Deputy Director, Quantitative Sciences, The Bill & Melinda Gates Foundation
“We’re committed to sharing data as a way to fuel treatment breakthroughs for muscular dystrophy. Vivli makes that possible.” said Debra Miller, founder and CEO, CureDuchenne.
“Duke University School of Medicine is pleased to partner with Vivli to foster the principles of open science and data access from clinical studies,” said Adrian Hernandez, MD, Vice Dean for Clinical Research, Duke University School of Medicine. “At Duke, we are committed to developing research polices, platforms, and methods to provide appropriate access to research information, with the ultimate goal of expediting the development of new treatments to improve the health of patients around the world.”
“The mission of Vivli is fully aligned with that of Harvard University in promoting collaborative research and data sharing and transparency,” says Ara Tahmassian, Ph.D., Chief Research Compliance Officer, Harvard University. “Our faculty has a long history of data sharing. Our commitment to Vivli reflects our support by providing one platform for our researchers to fulfill ICMJE and funder data sharing requirements.”
Helmsley Charitable Trust
“Every day, we are reminded of the urgent need to accelerate medical research. Too many people around the world are suffering from disease and need more effective treatments,” said Stephanie Cuskley, CEO of the Helmsley Charitable Trust, a founding member of Vivli. “Partners like Vivli offer a unique opportunity for research institutions to maximize their impact by sharing data and working together to propel new scientific discoveries forward.”
“Strategic partnerships in healthcare and life sciences have become a major focus for Microsoft as an organization. We have a series of initiatives underway that will lead to improvements in the clinical trials process, and an increase of the value that can be extracted from clinical trials data. Vivli’s commitment to the ethical sharing of data for the greater public good and the advancement of open science makes them an ideal partner for Microsoft, and we look forward to deepening the partnership in coming years, as we look for innovative new ways to enhance the Vivli platform.” – Paul Slater, Co-Founder, Life Sciences Innovation, Microsoft
“Pfizer participates in Vivli and other data-sharing platforms and collaborations because we believe that providing access to clinical data, when managed responsibly and in ways that respect patients’ privacy and preferences, may advance scientific knowledge and public health,” said Freda Lewis-Hall, M.D., Executive Vice President and Chief Medical Officer, Pfizer. “We hope that the
Vivli platform will help the research community to solve unanswered questions for the benefit of patients.”
“UCB has worked with the Vivli platform and its team as it has grown and developed and we are thrilled to be joining Vivli,” said Liz Roberts, Senior Director, Strategic Data Opportunities Policy Lead at UCB. “We look forward to working with the Vivli team as well as the other members to continue to share our data and advance scientific research.”
Vivli welcomed representatives from our fifteen Founding Member organizations to our July 2018 Launch Meeting: AbbVie, Aegerion Pharmaceuticals, Biogen, BioLINCC, Critical Path Institute, Duke University, GlaxoSmithKline, Harvard University, ImmPort, Johns Hopkins University, Pfizer, Project Data Sphere, Takeda, the Helmsley Charitable Trust, and UCSF.