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October 1, 2024 | Event: 2024 Vivli Annual Meeting – Innovations in Data Sharing
Please join us at the Harvard Faculty Club in Cambridge, MA, on Friday, November 15, for the 2024 Vivli Annual Meeting, co-hosted with the MRCT ...  > MORE
June 17, 2024 | Vivli version 3.4 of the platform has been released
Version 3.4 of the Vivli platform has been released and is available to users. The key change with the new version of the platform is ...  > MORE
May 3, 2024 | Vivli CEO Rebecca Li to participate in panel discussion for Harnessing the Potential of Patient-Level data in Clinical Trials     
Vivli’s CEO, Rebecca Li, will speak on Day 3 at the Global Clinical Trials: Technology & Innovation webcase series. This online event will take place ...  > MORE
May 2, 2024 | Vivli launches Case Studies to showcase the work of our innovative researchers
Vivli is delighted to announce the launch of our new Case Studies series, designed to highlight the work of researchers around the world who are ...  > MORE
April 16, 2024 | Vivli Researcher Spotlight: Making an Impact in Oncology Treatment Using Individual Patient-Level Data
Analyzing individual patient-level data (IPD) from completed clinical trials to glean additional insights about patient populations is a key benefit of data sharing and reuse. ...  > MORE
April 16, 2024 | Vivli Webinar: The Potential Impact of Recent U.S. Legal Developments on Data Sharing with China and Other Countries of Concern
Vivli held a webinar to discuss recent developments in data privacy laws and their impact on data sharing. This webinar was held at 5pm CEST ...  > MORE
February 25, 2024 | Awardees Announced for Helmsley’s T1D Exercise Data Challenge
In September 2022, the Leona M. and Harry B. Helmsley Charitable Trust’s Type 1 Diabetes Program announced the launch of an initiative to support novel, ...  > MORE
February 21, 2024 | Vivli Researcher Spotlight: Reusing Data from a Completed Clinical Trial to Inform Guidelines
In a recent study led by Dr. Sarah Nevitt, a senior research associate at the University of Liverpool, a team of researchers examined the effectiveness ...  > MORE
February 2, 2024 | Vivli Researcher Spotlight: Assessing Clinical Trial Data on Cardiac Risk in Type 2 Diabetes Treatment
Dr. João Sérgio Neves is an endocrinologist, based in the Faculty of Medicine of the University of Porto and São João Hospital in Porto, Portugal. ...  > MORE
December 15, 2023 | Proceedings and Recordings from “Shaping the Next 10 Years in Data Sharing” from Nov 16, 2023
PROCEEDINGS RECORDINGS Please find linked above the proceedings and a recording of the meeting. This includes separate recordings of all panels and the keynote sessions ...  > MORE
November 15, 2023 | Event: Shaping the next 10 years in data sharing: Building on the gains made and looking ahead to the next 10 years in advancing human health
Please join Vivli at the National Academy of Medicine in Washington, DC on November 16, 2023 in Washington, D.C. for a strategic meeting to collectively ...  > MORE
October 26, 2023 | Keynote speakers: Monica Bertagnolli, the NCI Director, and Robert Califf, FDA Commissioner, to present at the Vivli meeting at the National Academy of Sciences in November.
Vivli is delighted to announce the addition of two keynote speakers to the agenda for our upcoming event, “Shaping the next 10 years in Data ...  > MORE
October 3, 2023 | Awardees Announced for the Vivli AMR Surveillance Open Data Re-Use Data Challenge, funded by Wellcome
Awardees Announced for the Vivli AMR Surveillance Open Data Re-Use Data Challenge, funded by Wellcome Vivli is pleased to announce the awardees of the Vivli ...  > MORE
September 25, 2023 | There’s more on Vivli than just clinical trial data
Did you know there’s more on Vivli than just clinical trial data? The majority of our repository of data comes from clinical trial data, but ...  > MORE
September 12, 2023 | Vivli Researcher Spotlight: Dr. Neeraj Nerula on the use of Vivli’s platform to advance inflammatory bowel disease research
Dr. Neeraj Narula is an Associate Professor of Medicine and Staff Gastroenterologist at McMaster University in Hamilton, Ontario, Canada. His primary research focus is on ...  > MORE
May 1, 2023 | Breaking News — Vivli announces the AMR Surveillance Open Data Re-use Challenge, funded by Wellcome, EOI due June 30
Vivli has launched the Vivli AMR Surveillance Open Data Re-use Challenge, funded by Wellcome. The data challenge aims to stimulate and support the innovative re-use ...  > MORE
April 26, 2023 | Vivli Researcher Spotlight: Dr. Elena Myasoedova on accessing clinical trial data to advance research and the possibilities for using machine learning as a tool in clinical support for people with rheumatoid arthritis
Elena Myasoedova, M.D., Ph.D., is a clinical rheumatologist with specialty interest in inflammatory arthritis. She is an associate professor of medicine and epidemiology and clinical ...  > MORE
April 18, 2023 | T1D exercise data RFP from Helmsley Charitable Trust due the end of this month
The Leona M. and Harry B. Helmsley Charitable Trust’s Type 1 Diabetes Program has launched an initiative to support innovative and practicable solutions to help ...  > MORE
March 12, 2023 | Vivli Executive Director Dr. Rebecca Li Speaking at NIA-DUKE-Alzheimer’s Association Workshop
Rebecca Li will be speaking at the NIA-DUKE-Alzheimer’s Association Workshop held on March 15-16th sponsored by the National Institute on Aging. The focus of the ...  > MORE
February 16, 2023 |  NIH’s New Data Sharing Policy: Maximizing the Value of Research through Data Re-use and Data Access on the Vivli Repository
Learn how the Vivli repository is making it easier for scientists to share and access data, and how you can comply with the NIH’s data ...  > MORE
November 30, 2022 | Vivli webinar: “Applying the SAFE Data Standard to Securely Share Clinical Trial Data”
Vivli hosted a webinar to discuss applications of the SAFE Data Standard as defined in “Sharing Anonymized and Functionally Effective (SAFE) Data Standard for Safely ...  > MORE
November 2, 2022 | View the Recording of Vivli’s 2022 Annual Meeting
“Enabling the Data Sharing Ecosystem” Vivli’s 2022 Annual Meeting was held on Wednesday, November 2nd, 2022, 9:00am – 12:00pm EST / 2:00  – 5:00pm CET ...  > MORE
September 29, 2022 | Vivli partners with The Helmsley Charitable Trust to share T1D exercise data
The Leona M. and Harry B. Helmsley Charitable Trust’s Type 1 Diabetes Program announced the launch of their initiative to support novel, real-world solutions to ...  > MORE
September 26, 2022 | Vivli team authors new publication in Health Data Science
The Vivli team, led by Executive Director Rebecca Li, recently authored a paper entitled “Health Data Sharing Platforms: Serving Researchers through Provision of Access to ...  > MORE
September 14, 2022 | Vivli webinar with CRDSA: “Mind the Data Sharing Gap: Navigating sponsor policies and data protection methodologies.”
Vivli hosted CRDSA to explore findings of their newly published whitepaper, “A Review of BioPharma Sponsor Data Sharing Policies and Protection Methodologies.” The webinar was ...  > MORE
September 2, 2022 | Bayer Signs Up as a Member of Vivli
“We are thrilled to welcome Bayer as a member of Vivli,” said Rebecca Li, Vivli Executive Director. “We look forward to supporting researchers to request ...  > MORE
September 1, 2022 | President Selects former Vivli External Advisory Committee member as National Cancer Institute Director
Vivli enthusiastically congratulates Dr. Monica Bertagnolli on her recent appointment as Director of the National Cancer Institute (NCI). Dr. Bertagnolli has served as a long-time ...  > MORE
August 16, 2022 | Ipsen joins Vivli to Share its Data
“We are pleased that Ipsen has joined Vivli as a member,” said Rebecca Li, Vivli Executive Director. “By joining Vivli as a member, Ipsen is ...  > MORE
November 19, 2021 | Vivli Senior Director Julie Wood to Speak at Future-Proof Your Clinical Data Disclosure, Transparency and Plain Language Summaries Event
Clinical Trials- Informa Connect is hosting a hybrid event, “Future-Proof Your Clinical Data Disclosure, Transparency and Plain Language Summaries,” in June 2022. They will be ...  > MORE
November 4, 2021 | View the Recording of Vivli’s 2021 Annual Meeting
“Creating Value by Working Together” Vivli’s 2021 Annual Meeting was held on November 3rd. This meeting served as a chance to allow researchers, data contributors, ...  > MORE
October 28, 2021 | Leaders in Health Research Data Sharing Announce Partnership to Drive Insights in Alzheimer’s disease
A new partnership between the Alzheimer’s Disease Data Initiative (ADDI) and Vivli expands access to critical clinical trial data from leading pharmaceutical companies. Today, the ...  > MORE
October 18, 2021 | IDDO to make COVID-19 studies discoverable on the Vivli platform
Vivli extends a warm welcome to our newest partner platform as a member, the Infectious Diseases Data Observatory (IDDO). “We are pleased IDDO is making their ...  > MORE
October 14, 2021 | Shionogi joins Vivli to share its data
“We are delighted to welcome Shionogi as our newest member,” said Rebecca Li, Vivli Executive Director. “We are excited to facilitate Shionogi’s continued commitment to ...  > MORE
October 11, 2021 | Vivli releases major update of the platform
Version 2.0 of the Vivli platform has been released and is available to users. “The improvements to the underlying infrastructure of Vivli should have major ...  > MORE
September 13, 2021 | Breast cancer research and data sharing – an interview with Dr. Ashley Hopkins
Vivli board member and Duke University Professor, Eric Perakslis, met with Dr. Ashley Hopkins of Flinders University to discuss the importance of his team’s research ...  > MORE
August 2, 2021 | Advancing the treatment of Crohn’s Disease through data sharing— An interview with Dr. Neeraj Narula
Vivli co-founder and UCSF professor Dr. Ida Sim had the opportunity to interview Dr. Neeraj Narula from McMaster University to discuss the value of clinical ...  > MORE
July 9, 2021 | NIAID to list its studies on the Vivli platform
Vivli extends a warm welcome to our newest partner platform as a member, the NIAID Clinical Trials Data Repository, AccessClinicalData@NIAID. “We are delighted to include AccessClinicalData@NIAID ...  > MORE
June 8, 2021 | Advancing Management of Rheumatoid Arthritis — A conversation with researchers about the impact of their research
Vivli Board Member Dr. Stewart recently connected with researchers Prof. José António P. Da Silva and Dr. Ricardo J.O. Ferreira from the University of Coimbra ...  > MORE
April 22, 2021 | A case study of data sharing in rare disease
There are more than 7,000 rare diseases and of those 90% are without an FDA-approved treatment. Sharing rare disease data is difficult for a number of ...  > MORE
February 23, 2021 | Vivli names remaining 9 Global Data Sharing Innovator Award Winners
In 2018, Vivli launched its first data analysis challenges to encourage researchers to search and request studies available on the Vivli platform. Since then, we ...  > MORE
February 22, 2021 | Vivli waives data contribution fees for researchers located in low-and-middle-income countries
  Vivli has waived fees associated with data contributions from academic researchers located in low-and-middle-income countries. “We decided to waive these fees as it was important ...  > MORE
January 25, 2021 | Vivli Co-founder Dr. Ida Sim to speak at CBMRT’s Transparency Summit Series
Center for Biomedical Research Transparency (CBMRT) is hosting its fourth annual global summit series with the intention to engage a diverse group of participants with ...  > MORE
January 12, 2021 | Training videos for researchers available on YouTube
Vivli is delighted to launch the first in a series of training videos aimed at researchers interested in accessing individual participant level data (IPD). These ...  > MORE
December 18, 2020 | Vivli Executive Director Rebecca Li to Present at PHUSE Data Transparency Winter Meeting
Vivli Executive Director, Rebecca Li, will join Critical Path Institute’s Jane Larkindale and Debra Miller from CureDuchenne for a session on Data Sharing of Rare ...  > MORE
November 25, 2020 | Vivli’s Dr. Ida Sim to lead dkNET webinar entitled “Vivli: A Global Clinical Trials Data Sharing Platform”
Vivli Co-Founder Dr. Ida Sim will lead a dkNET webinar entitled “Vivli: A Global Clinical Trials Data Sharing Platform”. dkNET is a search portal that ...  > MORE
November 11, 2020 | View the Recording of Vivli’s 2020 Annual Meeting
“Vivli Global Researchers and Key Stakeholders – Creating Impact” On November 10th, we gathered for a lively discussion as part of our 2020 Annual Meeting. ...  > MORE
November 10, 2020 | AstraZeneca will share patient-level clinical study data on Vivli
“We are delighted that AstraZeneca is joining as a Vivli member and making it possible for researchers to access the data from their clinical trials,” ...  > MORE
November 2, 2020 | Vivli Article on Data Sharing Published in BMJ Open
Vivli is excited to announce it’s newest publication entitled Timely access to trial data in the context of a pandemic: the time is now. The article, ...  > MORE
October 7, 2020 | Vivli Executive Director to take part in panel at Northeastern University CLIC Annual Conference
Vivli Executive Director, Rebecca Li, will take part in a panel discussion next week as part of Northeastern University’s Center for Law, Innovation and Creativity ...  > MORE
September 16, 2020 | Vivli team member to present at EMWA 2020 Symposium
Vivli’s Director of Strategy and Operations, Julie Wood, will be presenting at the 2020 European Medical Writers Association 2020 Virtual Symposium on 6 November 2020. ...  > MORE
August 6, 2020 | Synthetic Data Webinar: How to preserve privacy of participants when sharing clinical data
September 3 at 11AM ET This 60-minute webinar will explore the emergence of synthetic data, a privacy preservation approach to protect individual patient data. Top ...  > MORE
August 3, 2020 | Vivli Executive Director to take part in panel at Duke-FDA event on rare diseases and data sharing
Vivli Executive Director, Rebecca Li, will take part in a panel discussion as part of Data Sharing to Accelerate Therapeutic Development for Rare Diseases hosted ...  > MORE
July 27, 2020 | Mitsubishi Tanabe to share studies using the Vivli platform
Vivli extends a warm welcome to our newest member, Mitsubishi Tanabe Pharma. “We are delighted to include Mitsubishi Tanabe studies on the Vivli platform,” said ...  > MORE
July 1, 2020 | Taiho joins Vivli, a global data sharing platform
“We are delighted to welcome Taiho Pharma as a member of Vivli and to be able to partner with them to manage requests received for ...  > MORE
June 23, 2020 | Vivli members commit to sharing data from COVID-19 trials
Members of Vivli, the Center for Clinical Research Data, announce today their commitment to share their COVID-19 trials through Vivli. Members who have committed to ...  > MORE
June 19, 2020 | Accelerating Science in the Age of COVID-19: Three Key Data Initiatives
RECORDING Join Vivli, COVID Collaboration Platform (CP) and TransCelerate BioPharma for a discussion of how these organizations are working to support academia, foundations and industry ...  > MORE
May 14, 2020 | Roche will share patient-level clinical study data on Vivli
“We are thrilled to welcome Roche as a member of Vivli and to be able to list their studies on the platform,” said Rebecca Li, ...  > MORE
April 9, 2020 | Regeneron joins Vivli as a member
Regeneron joins Vivli, reinforcing their commitment to data transparency “We are pleased to welcome Regeneron as a member of Vivli,” said Rebecca Li, Vivli Executive ...  > MORE
March 20, 2020 | Vivli to launch a portal for sharing data from COVID-19 trials
Access to data from completed coronavirus trials would be made available to all qualified researchers Cambridge, MA–In a visible sign of data sharing leadership, Vivli, ...  > MORE
March 4, 2020 | Interview with Dr. John Frew, the first Vivli Pioneer Award Winner about his research, the difference it is making and using the Vivli platform
Dr. John Frew, the first Pioneer Award winner, from Rockefeller University, sat down for an interview with Vivli to share more about his research, the ...  > MORE
March 4, 2020 | First Vivli Global Data Sharing Innovator for publication in the area of dermatology and Vivli Pioneer Winners named
Vivli launched its first data analysis challenge shortly after our launch in an effort to generate interest and move data sharing forward. We are delighted ...  > MORE
January 29, 2020 | Future Directions: Real-World Data (RWD), Real-World Evidence (RWE) and Clinical Trials
VIEW HERE Join Vivli for a webinar discussing the differences between Real-World Data (RWD) and Real-World Evidence (RWE), and clinical trials. Different types of study ...  > MORE
January 8, 2020 | Vivli 2019 Progress Report published
We are delighted to share with you Vivli’s 2019 Progress Report, which highlights our milestones to date and plans for the year ahead. We look forward ...  > MORE
October 16, 2019 | 10 Tips and Tricks for drafting a successful data request
Few things are more frustrating than wasted time. The Vivli team wants to help you make the most of your valuable time, and to help ...  > MORE
September 18, 2019 | Johnson & Johnson joins Vivli as a member
“We are delighted to have Johnson & Johnson join Vivli as a member,” said Rebecca Li, Vivli Executive Director. “This partnership will drive science forward ...  > MORE
August 16, 2019 | Patients Don’t Have the Luxury of Patience
Long-term cancer survivor and patient advocate Jane Perlmutter tells us why data sharing is so important for people with rare diseases. Q: Why should we ...  > MORE
May 21, 2019 | Top five questions small and mid-size companies should ask before embarking on a data sharing program
By Rebecca Li, Vivli Executive Director I started my career at a small biotech company and understand the intensity of the start-up experience as well ...  > MORE
April 2, 2019 | Using Vivli to Meet ICMJE Data Sharing Requirements
 In June of 2017, the International Committee of Medical Journal Editors, or ICMJE, released new requirements for data sharing statements, for submissions to their publications. The ...  > MORE
January 7, 2019 | What is IPD meta-analysis?
Meta-analysis is a statistical technique for combining sources of quantitative evidence. It is an example of secondary analysis, which is a subsequent analysis of clinical ...  > MORE
December 14, 2018 | Using Vivli to Meet NIH Data Sharing Plan Requirements
Ida Sim, Technical Lead, Vivli As increasing numbers of funders introduce requirements for data sharing plans, researchers have to develop a new skill: how to ...  > MORE
September 26, 2018 | How our team supports users on the Vivli Platform
Vivli is an innovative new clinical research data sharing platform with a robust search engine that has been created to meet the needs of researchers ...  > MORE