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Center for Global Research Data

Annual Report

2020 Progress Report
Clinical Trial Data Sharing in The Time of COVID-19

Dear Friends,

2020 has been an unprecedented year for us all. For Vivli, the pandemic has magnified the necessity for data sharing. We’re seeing now, more than ever, that sharing the individual participant-level data that underpins trial results is vital to driving forward both new science as well as scientific consensus.

This year, we were delighted to welcome several new members to the Vivli platform, including AstraZeneca, CureDuchenne, Lundbeck, Mitsubishi Tanabe Pharma, Regeneron, Roche, Taiho and UCB. We were also thrilled to see the first wave of secondary research conducted through Vivli come to fruition, with findings already impacting the way clinical trials are run and illuminating new directions for patient care.

As we look ahead, we anticipate Vivli researchers will help to close vital gaps in our understanding not only for COVID-19 but in other diseases represented in the 18 therapeutic areas covered by the Vivli platform. We are enthusiastic to see the results of the hundreds of active proposals that are reusing clinical trial data shared on Vivli–building on prior knowledge to accelerate scientific progress.

To further these efforts, in 2021, we will be focused on:

  • Building our list of available COVID data
  • Expanding our training resources library
  • Increasing partnerships and collaborations with foundations, journals and academics

I would like to thank our members, stakeholders, funders and researchers for their trust and continued support.

 

Rebecca LiREBECCA LI,

EXECUTIVE DIRECTOR, VIVLI

2020 Highlights

Accelerating coronavirus treatments through data sharing Read more
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In a visible sign of data sharing leadership, Vivli launched a COVID-19 portal in March 2020 to enable researchers to share data from completed interventional treatment trials. All member and user fees were waived for sharing and access. More than 9 COVID-19 studies have been listed on our platform so far, with commitments from Vivli members to contribute data as it becomes available.
Spurring leading-edge research that re-uses clinical data Read more
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Research teams from 10 institutions were awarded Vivli’s Global Data Sharing Innovator and Pioneer awards as part of Vivli’s first-ever Data Analysis Challenge aimed at accelerating big data analysis for clinical trials. The research conducted by the winning teams, which uses data from the Vivli platform, is already having an impact on future clinical trial design and patient care.
Facilitating 200+ novel research projects Read more
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Proposals for data poured in throughout 2020, with researchers from government, academia and industry initiating projects using data shared on the Vivli platform. The research proposals span a number of diseases including Alzheimer’s, cancer, Crohn’s, diabetes, HIV and rheumatoid arthritis, seeking new insights to improve patient care and treatment efficacy.
Creating impact through data sharing Read more
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Convening 180+ researchers and data contributors from around the world, Vivli’s 2020 Annual Meeting fostered a vibrant discussion about data sharing during a time of public health emergency, and how to further increase scientific knowledge through data sharing.

2020 Milestones

2020 milestones

2020 Revenue and Expenses

 

2020 Revenue

Revenue

2020 Expenses

Expenses