News & Events

Watch the recording of Vivli’s Annual Meeting

The Vivli Annual Meeting event on Wednesday, September 18, 2019 was recorded.

For those who are unable to attend the meeting in person, you can view the proceedings.

Annual Meeting Agenda

Welcome remarks

Vivli Update for 2019 and Vision for 2020

Working lunch

Invited Speaker: Informed consent and secondary use of data for data sharing – David Peloquin, Ropes & Gray

Panel Discussion: Challenges of sharing small datasets and rare disease data

  • Patrick Cullinan, Takeda
  • Edith Eby, Pfizer
  • Robyn Himick, Amyloidosis Research Consortium
  • David Peloquin, Ropes & Gray
  • Susan Ward, cTAP

Lightning Rounds–Brief updates from Vivli stakeholders

  • Tianjing Li, Johns Hopkins University – Meta-analysis Utilizing IPD
  • Quan Chen, ImmPort, NIH – Data reuse partner
  • Gaurav Luthria and Qingbo Wang, Harvard University – Vivli Microsoft 2019 Datathon Grand Prize Winners
  • Heather Pierce and Anurupa Dev, Association of American Medical Colleges – Credit for data sharing
  • Pam Miller, New England Journal of Medicine – NEJM Experience with Data-Sharing Statements

Wrap-up and Next steps