Center for Global Research Data

News & Events

March 1, 2018 | Vivli Platform Launch Event

Clinical trials drive innovation and advance human health. Yet, many in the research community have long believed that we can do even more with the valuable information gathered in those trials. With the launch of the Vivli platform, the global research community will gain a powerful new way to discover, share, and analyze clinical trial data.

Vivli evolved from a project of The Multi-Regional Clinical Trials Center of Brigham and Women’s Hospital and Harvard (MRCT Center) to enhance access to clinical research data by promoting data sharing and transparency. In 2013, the MRCT Center and a diverse group of global stakeholders embarked on a mission to define, design, and launch a solution to global clinical research data sharing. The launch of the Vivli platform in July will be the final step in turning this MRCT project into a reality. 

The Vivli platform launch event will be held at the National Academies in Washington, D.C. on July 19th. The is free but registration is mandatory, so please register online here as soon as possible as space is limited. 

In addition to recognizing the diverse group of stakeholders and partners whose contributions have helped make the Vivli platform a reality, the launch will serve as a forum for discussion about the future of data sharing in the clinical trials research community.  We hope that you will be able to join us for the official launch of the Vivli platform.

 

Date: July 19, 2018, 8.30am-2pm

Location: National Academies, 2101 Constitution Avenue, NW Washington, DC 20418

 

Agenda

8:30-9:00 Breakfast/Registration 

9:00-9:20 Opening Address by Victor Dzau (President, National Academy of Medicine)

9:20-10:15 Unveiling the Vivli Platform and Platform Demo 

Moderator: Michael Stebbins

  • Rebecca Li, Vivli
  • Frank Rockhold, Duke University
  • Paul Slater, Microsoft
  • Ida Sim, UCSF/Vivli

Followed by group discussion and Q & A

10:15-10:30 Break 

10:30-11:10 Panel One: Moving the Needle: How to Shift the Culture on Data Sharing 

Moderator: Barbara Bierer 

  • Sean Coady, NIH, NHLBI 
  • Daniel Ford, Johns Hopkins School of Medicine 
  • Pamela Miller, NEJM 
  • Jane Perlmutter, Gemini Group
  • Catrin Tudur Smith, University of Liverpool 
  • Followed by group discussion and Q & A

11:10-11:45 Panel Two: The Future Direction on Data Sharing: Industry Perspectives

Moderator: Rebecca Li 

  • Andy Powrie-Smith, EFPIA  
  • Karla Childers, J&J
  • Pfizer (Invited) 
  • Jessica Scott, GSK 
  • Murray Stewart, Novelion Therapeutics 

Followed by group discussion and Q & A

12:00-12:15 Lightning Rounds 

  • Lorne Becker, Cochrane
  • David Bobbitt, CDISC
  • Sander Timmer, Microsoft (Invited) 

12:15-1:05 Lunch 

1:05-1:45 Panel Three: The Levers of Change: Views on Incentivizing Data Sharing 

Moderator: Mark Barnes 

  • Gina Agiostratidou, Helmsley Charitable Trust  
  • Stuart Buck, Laura and John Arnold Foundation 
  • Jennifer O’Callaghan, Wellcome Trust 
  • Betsy Myers, Doris Duke Foundation 
  • Colleen Rye, FasterCures (Invited) 

Followed by group discussion and Q & A

1:45-2:00 Concluding Remarks by Julie Wood and Rebecca Li 

Lodging Information

A list of preferred hotels near the National Academies can be found here. As this will be during the height of the tourist season, we advise booking early to avoid disappointment.

Transportation Information

The National Academy of Sciences Building, located at 2101 Constitution Ave., NW, in the Foggy Bottom area of Washington, D.C., is served by Ronald Reagan National Airport (DCA), Dulles International Airport (IAD) and Baltimore/Washington International Airport (BWI). It is accessible by Metro’s Orange and Blue lines.

There is a limited number of parking spaces that will be allocated on a first, first served basis. Parking can also be found at the following:

  • PMI (Columbia Plaza) – 2400 Virginia Avenue. Operating daily rate is $24.00
  • PMI – 1111 19th Street. Operating daily rate is $24.00
  • GW Elliot School Garage near Department of Interior – 1957 E Street, N.W. Operating daily rate is $26.00.