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Center for Global Research Data

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Author Archives: Gabby Regan

“We are delighted to announce that global specialty pharmaceutical company, Kyowa Kirin, has joined Vivli as a member,” said Rebecca Li, Vivli Executive Director. Kyowa Kirin strives to contribute to the health and well-being of people around the world through cutting-edge, technology-driven science, and will provide data focused on four key therapeutic areas: Nephrology, Oncology,…

Vivli Executive Director, Rebecca Li, will join Critical Path Institute’s Jane Larkindale and Debra Miller from CureDuchenne for a session on Data Sharing of Rare Disease Data – Challenges and Rewards at the PHUSE Data Transparency Winter Meeting. This live presentation can be viewed on Tuesday 19th January 2021 between 15:00–17:30 GMT (10:00 am –…

We are delighted to share with you Vivli’s 2020 Progress Report, which highlights our milestones to date and plans for the year ahead. We look forward to continuing to grow together in 2021 and beyond, as leaders in data sharing and transparency, working together towards our end goal of advancing human health.

Vivli Co-Founder Dr. Ida Sim will lead a dkNET webinar entitled “Vivli: A Global Clinical Trials Data Sharing Platform”. dkNET is a search portal that helps researchers find research resources relevant to their research and keep up to date on new tools, services and mandates to support robust and reproducible science. In this webinar, Dr….

Vivli’s co-founder Ida Sim will give a presentation at the Crohn’s and Colitis Foundation’s 2020 IBD Biomarker Summit. Her talk entitled; Data Standards and Integration to Advance Biomarker Research will take place on December 2 at 11:45 am EST. Register to attend the meeting virtually. Vivli has 85 studies in Crohn’s and Colitis available to…

Vivli is excited to announce it’s newest publication entitled Timely access to trial data in the context of a pandemic: the time is now. The article, published in BMJ Open, highlights how Vivli is addressing the needs of the COVID-19 challenge and demonstrates how the sharing of data collected from each trial participant enables combining of…

“Vivli Global Researchers and Key Stakeholders – Creating Impact” On November 10th, we gathered for a lively discussion as part of our 2020 Annual Meeting. The meeting created a dialogue between researchers and data contributors about data sharing and what can be done to further increase scientific knowledge in future. VIEW THE RECORDING Agenda Welcome…

Vivli Executive Director, Rebecca Li, will take part in a panel discussion next week as part of Northeastern University’s Center for Law, Innovation and Creativity Annual Conference. The virtual conference, entitled This is What Democracy Looks Like – Exploring the Future of Governance Through Intellectual Property and Technology Regulation, will be held on Friday, October 16th…

Vivli’s Director of Strategy and Operations, Julie Wood, will be presenting at the 2020 European Medical Writers Association 2020 Virtual Symposium on 6 November 2020. The event’s theme is Research Integrity & The Medical Communicator: What We Do When Know One is Watching. Wood’s talk is entitled Responsible Data-Sharing to Improve Research Integrity. View the full…

September 3 at 11AM ET This 60-minute webinar will explore the emergence of synthetic data, a privacy preservation approach to protect individual patient data. Top experts will explain what synthetic data is, when and how to deploy this approach and share case studies about the successful utilization of using synthetic data and future applications of…

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