Lydia is a Clinical Trial Disclosure Associate for Vivli where she supports global data sharing efforts by managing research data access requests and ensuring alignment with contributor requirements.
Prior to this role, Lydia was a Presidential Management Fellow (PMF) at the National Institutes of Health (NIH), completing rotations across several institutes. Following her fellowship, she transitioned to a permanent role at the Fogarty International Center at NIH as a Health Science Policy Analyst, where she led strategic initiatives to advance global health research. Lydia holds a Master of Public Health in Global Health Epidemiology and Disease Control from George Washington University and a Bachelor of Health Science in Public Health from the University of Missouri.
Before joining Vivli, Swapna was the Staff QA automation Engineer at Ripple Science, where she led the automation of Quality proofing the developed/enhanced code resulting in saving of hours of testing. Before Ripple science, Swapna was with NDS (now Cisco) and Tata Elxsi systems in the area of software development.
Swapna holds a Masters degree in computer science from Bellevue University Nebraska.
Amanda Skarlupka is a Senior Program Manager for Vivli. She brings over 12 years of experience in pre-clinical and translational research, data management, and program management including providing strategic input and grants management for the National Institutes of Health. Amanda earned her Ph.D. in Infectious Diseases and her M.S. In Biostatistics and Epidemiology from the University of Georgia.
Prior to this role, Amanda was a Health Scientist Administrator and Presidential Management Fellow at the National Cancer Institute within the Division of Cancer Prevention. She oversaw the division’s initiation, development, and close-out of programs designed to build trans-disciplinary bridges between data scientists, oncologists, and federal agencies.
Prior to joining Vivli, Elizabeth was an Architect at Insight, Inc., a Vivli development partner. At Insight, Elizabeth was one of the first developers for the Vivli platform, joining the project at its kickoff in 2017 and continuing to work on Vivli for much of the next 7 years. She played a key role in translating complex business requirements into an effective implementation, and became known as the development team’s domain expert. Her other Insight experience included a number of Azure-based projects in the healthcare and life sciences vertical, working as a full stack developer with design responsibility for numerous Web APIs. Prior to Insight, Elizabeth worked in the medical device industry, building native applications for computer-assisted medical devices, with responsibility for all application development, maintenance, and software-related regulatory support.
Rylie Garrison, MEd is the Grants and Finance Administrator of Vivli. She also serves as Senior Grants Administrator in the Division of Pharmacoepidemiology and Pharmacoeconomics at Brigham and Women’s Hospital. In this position, she oversees finance and compliance for approximately 150 research grants from a variety of federal and philanthropic sponsors. She received her MEd in Higher Education Administration in 2019.
Alex joined the Vivli team in 2024 as an Executive Assistant where she provides support to our team.
Prior to joining Vivli, Alex worked with a boutique immigration law firm as a Law Clerk, supporting the partners and preparing substantive legal documents. Alex holds a Bachelor of Science degree in Legal Studies.
Vivli will host a workshop at the 2023 Cochrane Colloquium in London on September 4. The Cochrane Colloquium is an annual event for Cochrane in support of its mission to promote evidence-informed health decision-making.
Vivli’s workshop will focus on “Practical advice for accessing patient-level data from a data sharing platform for evidence synthesis.” This session will provide:
- an introduction to the Vivli platform, including an overview of data available and hands-on group work on how to submit a request for data
- an overview of first-hand experience of using patient level data using Vivli’s data sharing platform as a case study
- a discussion session focusing on some of the opportunities and challenges associated with using patient level data (for example: what to do when data needed to answer the hypothesis is not available via a single data sharing platform?)
This session will be a mixture of hands-on practice and opportunities to hear from researchers who have used the platform, patient advocates, and data providers. There will also be time for participants to ask questions about the data access process.
Vivli Senior Director Julie Wood will be joined by Alan Chant, the patient representative on the Independent Review Panel; Catrin Tudur Smith from the University of Liverpool; and Rebecca Sudlow from Roche to facilitate this workshop.
For more information on the 2023 Cochrane Colloquium and to register for this session, please see the event schedule. Please note that participation in this session is open only to registered Colloquium attendees.
Sarah is a Senior Clinical Research Manager at Vivli. She received a Bachelor of Science in Biomedical Science (BS) from Salem State University in 2015 and a Master of Science in Biotechnology, Bioinformatics (MS) from University of Maryland in 2022.
Prior to this role, Sarah has worked in a Molecular Biology laboratory as an Associate Scientist at Azenta Life Sciences. Most recently, she worked at a precision oncology company, Guardant Health, which specializes in liquid biopsy. Here, she served as a supervisor where she led Biospecimen management operation teams in the San Diego and Redwood City laboratories and gained experience in clinical trial sample management and clinical trial project coordination.
The NIH Data Management and Sharing (DMS) policy went into effect in January 2023 to promote the sharing of scientific data.
Please watch Vivli’s recent webinar and find out more about how Vivli can help you navigate the NIH Data Management and Sharing policy. Hear from academic staff on their experiences in supporting researchers with their Data Management and Sharing Plans (DMSP).
During this webinar, we:
- Provide an overview of Vivli, including what types of data should be shared in Vivli
- Discuss the benefits of using Vivli to meet the data sharing requirements of your NIH grant
- Review the steps to completing the NIH DMSP and budget justification
- Hear views from academic staff on their experiences supporting researchers to complete the new NIH DMSP
Speakers include:
- Anne Seymour, Johns Hopkins University
- Amy Nurnberger, Massachusetts Institute of Technology
- John Borghi, Stanford University
- Rebecca Li and Julie Wood, Vivli
Participants had the opportunity to ask questions. This webinar is most useful for current or prospective NIH grantees or those who support them.
Irene Troupansky is the Senior Software Architect at Vivli.
Prior to joining Vivli, Irene was a Senior Software Architect at Examity where she helped the company to launch its first Cloud SaaS Multi-Tenant version of Examity Platform and lead its further design and development through the company rapid growing, insuring Examity’s leading place as online proctoring provider. Prior to Examity, Irene was a Lead Architect/Developer at Tracker Systems, where she helped the company to upgrade its product to a Cloud SaaS version and lead the product further design and development.
