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The Leona M. and Harry B. Helmsley Charitable Trust’s Type 1 Diabetes Program announced the launch of their initiative to support novel, real-world solutions to help people with type 1 diabetes exercise safely and to improve their quality of life. Helmsley collaborated with the Jaeb Center for Health Research (JCHR) and a group of investigators…

The Vivli team, led by Executive Director Rebecca Li, recently authored a paper entitled “Health Data Sharing Platforms: Serving Researchers through Provision of Access to High-Quality Data for Reuse.” This paper aims to raise awareness of the ecosystem of health-related data sharing platforms available for researchers to access high-quality data, and thus advance science by…

Vivli will host CRDSA as they explore findings of their newly published whitepaper, “A Review of BioPharma Sponsor Data Sharing Policies and Protection Methodologies.” The webinar will be held on October 6th, 11am EDT/8am PDT/5pm CEST Register here today! This one-hour webinar will feature the authors from the CRDSA’s new white paper “A Review of BioPharma…

“We are thrilled to welcome Bayer as a member of Vivli,” said Rebecca Li, Vivli Executive Director. “We look forward to supporting researchers to request and analyze Bayer’s data securely.” As a global leader in healthcare and nutrition, Bayer offers innovative products that support efforts to overcome challenges presented by a growing and aging global…

Vivli enthusiastically congratulates Dr. Monica Bertagnolli on her recent appointment as Director of the National Cancer Institute (NCI). Dr. Bertagnolli has served as a long-time member on the Vivli External Advisory Committee. “We are glad to see Dr. Monica Bertagnolli take on such an impactful role and we wish her all the best,” said Rebecca…

“Enabling the Data Sharing Ecosystem” Vivli’s 2022 Annual Meeting will be held on Wednesday, November 2nd, 2022, 9:00am – 12:00pm EST / 3:00  – 6:00pm CET / 11:00pm – 2:00am JST. This meeting will serve as a chance to allow researchers, data contributors, and funders to discuss data sharing and its importance for furthering scientific…

“We are pleased that Ipsen has joined Vivli as a member,” said Rebecca Li, Vivli Executive Director. “By joining Vivli as a member, Ipsen is meeting the PhRMA/EFPIA Principles for Responsible Clinical Trial Data Sharing.” Ipsen’s vision is to be a leading global mid-size biopharmaceutical company, with a focus on transformative medicines in three key…

Clinical Trials- Informa Connect is hosting a hybrid event, “Future-Proof Your Clinical Data Disclosure, Transparency and Plain Language Summaries,” in June 2022. They will be featuring Vivli’s Senior Director, Julie Wood, in their series on Data Sharing Challenges in the presentation, “CASE STUDY: Sharing of Covid-19 Trials on Data Sharing Platforms.” Julie Wood – Director…

“Creating Value by Working Together” Vivli’s 2021 Annual Meeting was held on November 3rd. This meeting served as a chance to allow researchers, data contributors, and funders to discuss data sharing and its importance for furthering scientific discoveries. View the Recording View the Presentation Agenda Welcome remarks Vivli Update for 2021, Rebecca Li, Executive Director,…

A new partnership between the Alzheimer’s Disease Data Initiative (ADDI) and Vivli expands access to critical clinical trial data from leading pharmaceutical companies. Today, the Alzheimer’s Disease Data Initiative (ADDI) and Vivli – two leading health data organizations – announced a new partnership. It is aimed at expanding access and interoperability of data from completed…

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