News & Events

Category: News

Meet the 2025 Vivli Ambassadors

Vivli is proud to announce the selection of our 2025 Vivli Ambassadors. This diverse group of researchers has been chosen for their commitment to data transparency and their leadership in advancing clinical research around the world.

“We are delighted to have the interest and involvement by these researchers to advocate for data sharing and how sharing data can lead to novel insights and add to the scientific literature,” said Rebecca Li, Vivli CEO. “We look forward to supporting these researchers as they discuss their scientific findings.”

The Vivli Ambassador program aims to amplify the impact of data sharing by supporting researchers who are using the Vivli platform in innovative and meaningful ways. This group of dedicated researchers will talk about their research at conferences and through other means of dissemination. They will participate in user interviews, provide feedback to help improve the Vivli user experience, and contribute to conversations around responsible data reuse.

We congratulate the following researchers on their selection:

  • Dr. Diego Chowell, Icahn School of Medicine at Mount Sinai
  • Dr. Ashley Hopkins, Flinders University
  • Dr. David McAllister, University of Glasgow
  • Dr. Jonas Saal, University Hospital Bonn
  • Dr. Marco Valgimigli, Cardiocentro Ticino
  • Dr. Youssef Zeidan, Baptist Health South Florida

These Ambassadors represent a range of disciplines and geographic regions, and we look forward to sharing more about their work and experiences in the coming months.

Stay tuned as we highlight their stories and insights through our upcoming events and publications.

Event: 2025 Vivli Annual Meeting – Data in Action: From Contribution to Impact

Please join us at Loeb House at Harvard University Campus in Cambridge, MA, on Thursday, October 23, for the 2025 Vivli Annual Meeting, co-hosted with the MRCT Center of Brigham and Women’s Hospital and Harvard.

REGISTER

During this meeting, we will:

  • Explore how researchers, data contributors, and funders are transforming clinical trial data into real-world health impact.
  • Hear how data sharing platforms like Vivli are enabling responsible data sharing and fostering a cycle of data re-use.
  • Learn about success stories of groundbreaking data challenges, success stories and how they are shaping new developments in various fields of medicine.

The MRCT Center’s Annual Symposium will be held on Wednesday, October 22, at Ropes & Gray.

This event is free, but registration is mandatory. Please register as soon as possible, as in-person space is limited. Virtual attendees will be able to view and ask questions of presenters. Please email support@vivli.org with any questions.

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Agenda

Welcome and Introductions Rebecca Li, CEO
Researcher and Data Contributor Panel – From Contribution to Impact in Clinical Trial Applicability to Routine Care

David McAllister, Glasgow University

Ben Rotz, Lilly

Cris Woolston, Sanofi
Data Challenge – Lessons Learned from the Helmsley Type 1 Diabetes Challenge Deniz Dalton, Leona M. and Harry B. Helmsley Charitable Trust
Data Challenge – Lessons Learned from AMR Data Challenges

Katherine Perez, Pfizer

Kasim Allel Henriquez, Oxford University

Harry Akligoh, Northeastern University
Researcher and Data Contributor Panel – From Contribution to Impact in Oncology

Paula Boyles, Pfizer

Jennifer O’Callaghan, Roche

Jonas Saal, University Hospital Bonn

Youssef Zeidan, Baptist Health South Florida

DOJ Countries of Concern – Final Ruling and

Practical Implementation for Data Sharing

David Peloquin, Ropes & Gray

Julie Wood, Vivli
Unlocking Imaging Data Sharing – A Collaboration on Imaging Anonymization Dan Boisvert, Biogen

 

Alfasigma joins Vivli as a member to share data

“We are delighted to have Alfasigma join as a member of Vivli,” said Rebecca Li, Vivli CEO. “We look forward to working with the team at Alfasigma to share data to meet their data sharing commitments.”

For more information about the conditions for accessing Alfasigma data, please visit their member page. Learn more about membership in Vivli.

 

Celebrate Clinical Trials Day by sharing your data and get CRedIT!

Clinical Trials Day is celebrated on May 20, commemorating the day in 1747 on which James Lind is believed to have begun the first known controlled trial. Clinical trials remain the cornerstone of effective scientific and health research, and the clinical research data gathered provides valuable resources for further research, advancing science, and improving human health.

Sharing data is valuable not only to the research community, but also benefits the researchers who have conducted the trials and gathered the data. The Vivli platform enables researcher teams who submit and store their clinical research data to receive CRedIT on their ORCID profiles. Subsequent secondary analysis publications that are derived from the initial data are cited and tracked in Vivli.

Learn more about how data sharing with Vivli can contribute to your CRedIT in this new informational video.

Vivli co-founder to be honored at Research!America Advocacy Awards


Vivli is delighted to congratulate our co-founder and Board member Dr. Barbara Bierer on being chosen to receive the Herbert Pardes Family Award for National Leadership in Advocacy for Research.

The Research!America Advocacy Awards honor “individuals and organizations whose leadership efforts have advanced our nation’s commitment to medical, health, and scientific research.” The award will be presented at an event on March 12 at the National Academy of Sciences in Washington, D.C.

Dr. Bierer is the faculty co-chair of the Multi-Regional Clinical Trials Center of Harvard and Brigham and Women’s Hospital (MRCT Center); a Professor of Medicine, Harvard Medical School and Brigham and Women’s Hospital, Boston; and a hematologist/oncologist. Her clinical, research, and non-profit work throughout her career demonstrate her commitment to public engagement, research integrity, and innovation.

“We are thrilled to hear of Dr. Barbara Bierer’s award,” said Rebecca Li, Vivli CEO. “Her work as both a clinician and an advocate for improving access to medical data have had an enormous impact on health research.”

Read more about the Research!America Advocacy Awards

 

Vivli launches Ambassador Program

Vivli is delighted to share that we have launched the Ambassador Program and selected our inaugural cohort of Ambassadors. The program was created to raise awareness of the importance of data sharing and reuse, as well as to promote the research opportunities available through the Vivli data repository.

Selected Ambassadors were eligible for financial support to attend conferences aligned with their research focus. A total of five travel grants of $2,500 were awarded. In addition to presenting their work, Ambassadors will participate in user interviews and testing twice a year to help guide the continued development of the Vivli platform.

Researchers who had successfully completed a project using data from the Vivli repository were invited to apply. Eligible researchers received a direct email invitation to submit a brief proposal outlining how they would promote research using the Vivli platform.

Read the full announcement here.

Vivli Webinar: Unlock the Power of Data Analysis in Vivli: Practical approaches to understanding the data and delving deeper into the CDISC standard

Are you a researcher who has analyzed data on Vivli? Or has your research team already analyzed data in the Vivli platform but is looking for more efficient approaches?

This 3-hour training will provide researchers with a practical approach to understanding the data, provide an overview of CDISC, and how this data standard can help you understand the data. It is aimed at clinical researchers and biostatisticians interested in analyzing data in the Vivli platform. There will be an opportunity for participants to ask questions.

View the Recording

Topics include:

  • Understand the type of datasets and supporting documents received after approval.
  • Understand CDISC, SDTM and ADaM? How can these standards help make my analysis more efficient?
  • How to conduct reproducible, safe, open and efficient analyses with special considerations for secondary trial analyses within the Vivli environment.

Speakers & Panelists:

  • Jack Shostak, Director of Biostatistical Operations, Duke & CDISC instructor
  • David A McAllister, Professor of Clinical Epidemiology and Medical Informatics and Honorary Consultant in Public Health Medicine, University of Glasgow
  • Nicole Harmon, COO, CDISC
  • Rebecca Li, CEO, Vivli

View the Recording

 

New Chair announced for Vivli Independent Review Panel

Vivli is pleased to announce the appointment of the new Chair to the Independent Review Panel (IRP). Dr. Sonali Kochhar, MD, will take on this role from 14th February 2025. Dr. Kochhar has already served as a member of the IRP for several years, bringing her wealth of expertise in Global Healthcare and clinical development.

Vivli CEO, Rebecca Li, PhD, welcomed Sonali as Chair, saying “We’re delighted to have Sonali take over as Chair of the IRP. Her experience and commitment will be invaluable going forward. ”

Vivli would also like to thank the longstanding IRP Chair, Jeff Koplan, who has served as Chair of the review panel since 2015.

“Jeff’s hard work and dedication in chairing the IRP for the last 10 years has been invaluable, and we wish him a happy retirement!” said Li.

Vivli Webinar: The Power of Sharing Clinical Trial Data: How to Build a Data Sharing Program While Protecting Participant Privacy


Vivli partnered with Real Life Sciences (RLS) to present this webinar on Thursday, February 20 at 10:00 am ET. Presenters explored how RLS and Vivli enable secure data sharing for study sponsors. Participants learned key steps to launching a data-sharing program and discovered why empirical data anonymization techniques are essential for maintaining participant privacy while maximizing research value.



Vivli webinar: Vivli and RDCA-DAP: Data Platform Partnerships to Promote Rare Disease Data Sharing

Julie Wood, Vivli Chief Operating Officer, will join colleagues from Vivli and C-Path for a webinar on Thursday, February 20 at 12:00 pm ET. Julie will present an overview of Vivli’s global data-sharing and analytics platform and how Vivli’s collaboration with RDCA-DAP is advancing data sharing in rare diseases.

In addition to Julie’s presentation, the webinar will also include a panel discussion on platform-to-platform collaborations, strategies for facilitating data sharing, an interactive Q&A session with participants, and more!

View the Recording