“We are delighted to have Alfasigma join as a member of Vivli,” said Rebecca Li, Vivli CEO. “We look forward to working with the team at Alfasigma to share data to meet their data sharing commitments.”
For more information about the conditions for accessing Alfasigma data, please visit their member page. Learn more about membership in Vivli.
Clinical Trials Day is celebrated on May 20, commemorating the day in 1747 on which James Lind is believed to have begun the first known controlled trial. Clinical trials remain the cornerstone of effective scientific and health research, and the clinical research data gathered provides valuable resources for further research, advancing science, and improving human health.
Sharing data is valuable not only to the research community, but also benefits the researchers who have conducted the trials and gathered the data. The Vivli platform enables researcher teams who submit and store their clinical research data to receive CRedIT on their ORCID profiles. Subsequent secondary analysis publications that are derived from the initial data are cited and tracked in Vivli.
Vivli is delighted to congratulate our co-founder and Board member Dr. Barbara Bierer on being chosen to receive the Herbert Pardes Family Award for National Leadership in Advocacy for Research.
The Research!America Advocacy Awards honor “individuals and organizations whose leadership efforts have advanced our nation’s commitment to medical, health, and scientific research.” The award will be presented at an event on March 12 at the National Academy of Sciences in Washington, D.C.
Dr. Bierer is the faculty co-chair of the Multi-Regional Clinical Trials Center of Harvard and Brigham and Women’s Hospital (MRCT Center); a Professor of Medicine, Harvard Medical School and Brigham and Women’s Hospital, Boston; and a hematologist/oncologist. Her clinical, research, and non-profit work throughout her career demonstrate her commitment to public engagement, research integrity, and innovation.
“We are thrilled to hear of Dr. Barbara Bierer’s award,” said Rebecca Li, Vivli CEO. “Her work as both a clinician and an advocate for improving access to medical data have had an enormous impact on health research.”
Read more about the Research!America Advocacy Awards
Vivli is delighted to announce the launch of the Ambassador Program. The Ambassador Program aims to raise awareness of the importance of data sharing and data reuse, and of the research opportunities available in the Vivli data repository. Successful Vivli Ambassadors will be eligible for financial support to attend conferences in their area of research specialty. A total of five travel grants of $2,500 are available for successful applicants. Vivli Ambassadors will also participate in user interviews and testing twice a year to contribute to ongoing development of the Vivli platform.
Researchers who have successfully completed a research project using data from the Vivli repository are eligible to apply to become a Vivli Ambassador. Vivli will contact eligible researchers directly via email, with an invitation to submit a brief proposal outlining their idea for promoting research using the Vivli data repository.
If you have questions about this initiative or think you might be eligible to apply and haven’t received an email by April 1, 2025, please get in touch at support@vivli.org.
Are you a researcher who has analyzed data on Vivli? Or has your research team already analyzed data in the Vivli platform but is looking for more efficient approaches?
This 3-hour training will provide researchers with a practical approach to understanding the data, provide an overview of CDISC, and how this data standard can help you understand the data. It is aimed at clinical researchers and biostatisticians interested in analyzing data in the Vivli platform. There will be an opportunity for participants to ask questions.
Topics include:
Speakers & Panelists:
Vivli is pleased to announce the appointment of the new Chair to the Independent Review Panel (IRP). Dr. Sonali Kochhar, MD, will take on this role from 14th February 2025. Dr. Kochhar has already served as a member of the IRP for several years, bringing her wealth of expertise in Global Healthcare and clinical development.
Vivli CEO, Rebecca Li, PhD, welcomed Sonali as Chair, saying “We’re delighted to have Sonali take over as Chair of the IRP. Her experience and commitment will be invaluable going forward. ”
Vivli would also like to thank the longstanding IRP Chair, Jeff Koplan, who has served as Chair of the review panel since 2015.
“Jeff’s hard work and dedication in chairing the IRP for the last 10 years has been invaluable, and we wish him a happy retirement!” said Li.
Vivli partnered with Real Life Sciences (RLS) to present this webinar on Thursday, February 20 at 10:00 am ET. Presenters explored how RLS and Vivli enable secure data sharing for study sponsors. Participants learned key steps to launching a data-sharing program and discovered why empirical data anonymization techniques are essential for maintaining participant privacy while maximizing research value.
Julie Wood, Vivli Chief Operating Officer, will join colleagues from Vivli and C-Path for a webinar on Thursday, February 20 at 12:00 pm ET. Julie will present an overview of Vivli’s global data-sharing and analytics platform and how Vivli’s collaboration with RDCA-DAP is advancing data sharing in rare diseases.
In addition to Julie’s presentation, the webinar will also include a panel discussion on platform-to-platform collaborations, strategies for facilitating data sharing, an interactive Q&A session with participants, and more!
In this webinar, we will discuss the new Declaration of Helsinki and how institutions can take practical steps to institute an ethical and effective data sharing program.
Join us on Thursday, January 23 at 8am PST/11am EST/4pm GMT, for a discussion with Vivli’s CEO Rebecca Li and COO Julie Wood about the top five questions companies or non-profit foundations should ask when they are considering embarking on a data sharing program.
Topics include:
Speakers:
VIVLI, the Center for Global Clinical Research is seeking a Clinical Trial Transparency Associate. Vivli is a mission-focused non-profit and to help manage our continued growth, we are looking for a seasoned Clinical Trial Transparency Associate to join the operations team. The operations team supports researchers seeking to access datasets from contributors and provides support for data contributors.
Location: Remote, working core hours of 9am-5pm Eastern time zone, with the ability to travel 3-4 times per year.
Responsibilities will include but not limited to:
Qualifications
Must be authorized to work in the United States.
What We Offer
How to Apply
Interested candidates should submit their resume and a cover letter to hr@vivli.org