News & Events

Helmsley Charitable Trust Backs Vivli with Funding to Deliver Data-Sharing Platform

Cambridge, MA—November 14, 2017—Vivli has secHelmsley logoured funding from The Leona M. and Harry B. Helmsley Charitable Trust to deliver an innovative data-sharing platform, which will make it easier to find, host and analyze clinical trial data across disease areas to accelerate medical research. This funding will augment what Vivli has already received and ensure that the platform is available for public use in 2018.

“We are extremely grateful for the support and partnership offered by the Helmsley Charitable Trust,” said Rebecca Li, Vivli Executive Director. “This was the additional funding that we needed to complete the initial build of the Vivli platform. It will allow us to secure the infrastructure and operations to move us through the launch and beyond as we continue to expand the services offered.”

“Sharing data is critical to driving new scientific discoveries. We believe the Vivli platform will benefit global researchers by combining data sets across disease areas and breaking down traditional barriers of access,” said Stephanie Cuskley, CEO of the Helmsley Charitable Trust. “We hope to encourage others to build data sharing into their grantmaking. Ensuring that studies are listed on Vivli is one way we envision accelerating medical advances to improve patients’ lives.”

The Vivli platform’s central feature is a powerful search engine. Researchers will be able to make one combined data request on the platform for multiple data sets. Once the data requests are approved, researchers will be able to combine and analyze datasets within the Vivli platform using statistical tools.

“We are very aware that we stand on the shoulders of all of those who have gone before us in their work to promote and make data sharing a reality,” said Li. “Our intention is that Vivli will support and amplify the work of existing data repositories by making those data sets easier to find and analyze, thereby allowing researchers to drive new insights and discoveries.”

About Vivli

Launched in 2016 as a not-for-profit, 501(c)(3) entity, Vivli is the nonprofit center for the governance, development, and management of the global clinical research data-sharing platform. For more information, visit https://vivli.org

About the Helmsley Charitable Trust

The Leona M. and Harry B. Helmsley Charitable Trust aspires to improve lives by supporting effective organizations in health and select place-based initiatives. Since beginning active grantmaking in 2008, Helmsley has committed more than $1.8 billion for a wide range of charitable purposes. For more information, visit https://helmsleytrust.org.

 Contact

Vivli Media Relations, contact@vivli.org

Laura Fahey, lfahey@helmsleytrust.org

Laura and John Arnold Foundation contributes funding to launch Vivli, the Center for Global Clinical Research Data

Cambridge, Mass. – Vivli, a Massachusetts-based nonprofit, has received $2 million from the Laura and John Arnold Foundation to build a first-of-its-kind data sharing platform for clinical trial research. The innovative platform will include a data repository, analysis tools and a dynamic search engine. It will provide transparency and access to clinical research data from around the globe, break data out of existing silos, and accelerate scientific discovery to improve human health.

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Julie Wood to Join Vivli as Director of External Affairs

We are delighted to announce that Julie Wood will join Vivli in the role of Director of External Affairs starting in the beginning of October. Wood joins us from the Cochrane Collaboration, where she was the Head of Communications and External Affairs for the past three years.

During her time at Cochrane, she developed the team that focused on communications, media, dissemination, translations, strategic partnerships, branding and events, and fundraising. Wood was instrumental in the delivery of Cochrane’s re-brand, where she coordinated and launched the first-ever Global Evidence Summit.

Prior to joining Vivli, she spent a year working for a Microsoft partner and more than 12 years at Oxfam Great Britain, the development agency. Her final role at Oxfam GB was as the Director of Corporate Communications. Julie’s experience managing strategic partnerships, leadership skills, fundraising and experience with global programs bring make her the ideal person for this complex and critical role.

Vivli collaborates with Microsoft and BlueMetal on a new global clinical trial data platform to accelerate scientific discoveries for human health

Cambridge, Mass. –July 12, 2017– Vivli, a Massachusetts-based nonprofit, has collaborated with BlueMetal to build a first-of-its-kind data sharing platform for clinical trial research, powered by Microsoft Azure. The innovative platform, which will include a data repository, analysis tools and a dynamic search engine, will provide transparency and access to clinical research from around the globe, break out data from existing silos, and accelerate scientific discovery to improve human health.

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