News & Events

Vivli’s Executive Director and Director of Strategy and Operations to present at Clinical Data Disclosure, Transparency and Plain Language Summaries Virtual Conference

InformaConnect will be combining their EU and US events into one global virtual event this year: the Clinical Data Disclosure, Transparency & Plain Language Summaries, May 10th – May 12th. Participants can expect to learn from thought-leaders and innovators across the industry in this three-day event that covers topics:

  • Global clinical transparency regulations and data sharing
  • Harmonization, data sharing requirements and COVID-19 learnings
  • Plain language summaries, dissemination strategies and publications

Registration is free for patients and clinical investigators, and members of pharma companies, biotech companies, medical device, government body, non-profit and academic institutions.

Dr. Li be participating in the panel, “Balancing Sharing Results and Data Whilst Protecting Participants Data Privacy,” on May 10th and Julie Wood will be a part of the presentation, “Considerations for sponsors when using a Data Sharing Platform – Vivli as a case study,” on May 11th. Register today and learn more about other sessions in the conference here.

Vivli to host webinar: Clinical Trial Data Sharing and Machine Learning Research

Join Vivli for a webinar to learn about how Machine Learning (ML) research approaches may be used in the context of clinical data re-use.

These approaches raise important questions and opportunities for data sharing. Panelists will provide an overview of machine learning including case studies from Vivli (a global data sharing and analytics platform) where we have received requests from investigators requesting to obtain anonymized data to utilize machine learning approaches to conduct secondary analyses of data. Challenges and legal issues will be presented, and panelists will reflect on opportunities to work together on these issues to continue to move forward towards scientific discovery.

Join us as we explore where ML fits in with the future of secondary analysis and how we can optimize its approach.

The webinar will be held on March 23rd at 9:00 am PT / 12:00 pm ET / 5:00 pm GMT.


Key topics to be covered:

  • Machine Learning research approaches, and its similarity and differences to other statistical methods
  • Legal issues around ML and how they can be overcome
  • Machine Learning case studies

Panelists include: 

Ida Sim, UCSF and Vivli
Abigail Gregor, Ropes & Gray
Daniel Freshmen, Ropes & Gray

Vivli Co-founder Dr. Ida Sim to speak at CBMRT’s Transparency Summit Series

Center for Biomedical Research Transparency (CBMRT) is hosting its fourth annual global summit series with the intention to engage a diverse group of participants with a passion for increasing transparency in research practices. CBMRT will host a virtual Summit series with short sessions scheduled for February 26, March 16 and March 26.

Participants can expect a very engaged discussion on topics including research integrity, global open access policy developments, and transparency implications of research acceleration. Presentations will be deliberately brief (but content rich) to allow ample time for productive discussions to ensue.

MRCT Center and Vivli to host virtual Japan-based Roundtable Meeting

The MRCT Center and Vivli will host a virtual roundtable meeting for our stakeholders and members based in Japan. Meeting topics will include:

• Diversity in Clinical Trials,
• Approaches to Data Sharing, and
• Synthetic Data – Patient Privacy and Other Use Cases

Following presentations, Vivli and MRCT Center teams will be available for informal discussion.

The event will take place March 3, 2021 from 10:00 am to 12:30 pm Japan Standard Time (March 2, 2021 from 8:00-10:30 pm EST).

Vivli Executive Director Rebecca Li to Present at PHUSE Data Transparency Winter Meeting

Vivli Executive Director, Rebecca Li, will join Critical Path Institute’s Jane Larkindale and Debra Miller from CureDuchenne for a session on Data Sharing of Rare Disease Data – Challenges and Rewards at the PHUSE Data Transparency Winter Meeting.

This live presentation can be viewed on Tuesday 19th January 2021 between 15:00–17:30 GMT (10:00 am – 12:30 pm EST). Attendees will have the opportunity to listen to three live presentations, and then participate in a joint panel discussion/Q&A session based on the content from the day.

Vivli’s Dr. Ida Sim to lead dkNET webinar entitled “Vivli: A Global Clinical Trials Data Sharing Platform”

Vivli Co-Founder Dr. Ida Sim will lead a dkNET webinar entitled “Vivli: A Global Clinical Trials Data Sharing Platform”. dkNET is a search portal that helps researchers find research resources relevant to their research and keep up to date on new tools, services and mandates to support robust and reproducible science. In this webinar, Dr. Sim will explore questions such as why organizations should share completed clinical trial data, how Vivli can help organizations share their clinical trial data, and what the process is to request data from completed studies.

View the Recording of Vivli’s 2020 Annual Meeting

“Vivli Global Researchers and Key Stakeholders – Creating Impact”

On November 10th, we gathered for a lively discussion as part of our 2020 Annual Meeting. The meeting created a dialogue between researchers and data contributors about data sharing and what can be done to further increase scientific knowledge in future.



Welcome remarks

Vivli Update for 2020, Rebecca Li, Executive Director, Vivli

Panel: The Vivli Project Experience

  • Moderator: Marcia Levenstein, ScD, MBE, Vivli
  • John Frew, MD, Rockefeller University – First Vivli Global Data Sharing Innovator Winner
  • Areti Angeliki Veroniki, MSc, PhD, Senior Research Fellow, University of Ioannina – Member of Vivli Pioneer Award winning team
  • Jane Larkindale, DPhil, Executive Director, Rare Disease Cures Accelerator, Critical Path Institute

Panel Discussion: Cross-Platform Sharing

  • Moderator: Ida Sim, MD, PhD, Vivli, UCSF
  • Vivek Rudrapatna, MD, PhD, UCSF – Vivli Pioneer Award Winner
  • Karla Childers, Senior Director, MSJ, Strategic Projects, Johnson & Johnson
  • Liz Roberts, MSc, Senior Director, Strategic Data Opportunities Policy Lead, UCB

Invited Speakers: Data Sharing During a Time of Public Health Emergency

  • Georgina Humphreys, PhD, Clinical Data Sharing Manager, Wellcome Trust
  • Steve Kern, PhD, Deputy Director, Quantitative Sciences at Bill & Melinda Gates Foundation

Wrap-up and Next steps

  • Rebecca Li, Executive Director, Vivli
  • Michael Stebbins, PhD, Vivli Board Chair, President of Science Advisors

Vivli Executive Director to take part in panel at Northeastern University CLIC Annual Conference

Vivli Executive Director, Rebecca Li, will take part in a panel discussion next week as part of Northeastern University’s Center for Law, Innovation and Creativity Annual Conference.

The virtual conference, entitled This is What Democracy Looks Like – Exploring the Future of Governance Through Intellectual Property and Technology Regulation, will be held on Friday, October 16th from 9:00 am to 4:00 pm ET, and will feature discussions concerning transparency and innovation in health and medicine, election law, free speech and data privacy. Rebecca will participate in the first panel discussion on Privacy Incoherence in Medicines: The Confluence of Corporate Trade Secret, Government Non-Transparency, and AI Mediated Erosion of Patient Privacy.

Vivli team member to present at EMWA 2020 Symposium

Vivli’s Director of Strategy and Operations, Julie Wood, will be presenting at the 2020 European Medical Writers Association 2020 Virtual Symposium on 6 November 2020. The event’s theme is Research Integrity & The Medical Communicator: What We Do When Know One is Watching.

Wood’s talk is entitled Responsible Data-Sharing to Improve Research Integrity. View the full agenda

Synthetic Data Webinar: How to preserve privacy of participants when sharing clinical data

September 3 at 11AM ET

This 60-minute webinar will explore the emergence of synthetic data, a privacy preservation approach to protect individual patient data. Top experts will explain what synthetic data is, when and how to deploy this approach and share case studies about the successful utilization of using synthetic data and future applications of synthetic data.


Topics include:
• Highlight issues faced by data contributors wishing to share data from rare diseases concerned about privacy issues
• Putting synthetic data in context with other privacy preservation approaches
• Case studies of successful use of synthetic data and how it applies to clinical research

Webinar attendees will have the opportunity to ask questions of the panelists.

Ida Sim and Marcia Levenstein, Vivli

Patrick Cullinan, Bluebird Bio
Khaled El Emam, Replica Analytics
Michael Lesh, Syntegra