News & Events

Category: Events

Vivli webinar with CRDSA: “Mind the Data Sharing Gap: Navigating sponsor policies and data protection methodologies.”

Vivli hosted CRDSA to explore findings of their newly published whitepaper, “A Review of BioPharma Sponsor Data Sharing Policies and Protection Methodologies.”

The webinar was held on October 6th, 11am EDT/8am PDT/5pm CEST.

VIEW THE RECORDING

This one-hour webinar featured the authors from the CRDSA’s new white paper “A Review of BioPharma Sponsor Data Sharing Policies and Protection Methodologies” in a lively a moderated discussion with CRDSA’s CEO, Aaron Mann. This webinar explored findings from the white paper that examines sponsor’s data sharing policies and protection methodologies as well as reflections on actionable steps for sponsors and secondary analysis researchers alike.

  • For Researchers: Understand the policy and privacy elements that can impact research utility
  • For Data Contributors: Identify meaningful benchmarks to help guide policy development

Read the whitepaper here!

Speakers include:
Luk Arbuckle, Chief Methodologist, Privacy Analytics (an IQVIA company)
Liz Roberts, Senior Director, Data Policy and Privacy Lead, UCB

Moderated by:
Aaron Mann, CRDSA CEO

 

Vivli Executive Director Dr. Rebecca Li Speaking at 2022 Biomedical Transparency Summit

Vivli’s Executive Director, Dr. Rebecca Li, will be speaking at the Center for Biomedical Research Transparency’s 2022 Biomedical Transparency Summit on September 7th for “NIH Data Sharing Policy  – What you need to know!” Dr. Li will speak alongside NIH’s Active Director of the Office of Science Policy, Dr. Lyric Jorgenson and NIH’s Associate Director for Data Science, Dr. Susan K. Gregurick.

Dr. Li will be speaking at the Wednesday, September 7, session. Register today.

The 2022 Biomedical Transparency Summit is a virtual program of 2 webinars that brings together leaders in publishing, private and publicly funded research, policymakers and technology to share the latest transparency developments impacting research practice.

Webinar 1 will take place Wednesday, September 7 at 3pm EDT/NY, 8pm BST/London. Webinar 2 will take place Wednesday, September 14 at 3pm EDT/NY, 8pm BST/London. Attendees can expect to hear thought-provoking presentations, panel discussions and Q&A sessions around each of the day’s topics. Learn more information here.

Vivli Webinar: How Vivli Promotes Discoverability of Partner Platforms and Repositories

Vivli held a webinar to share how we work with our platform partners, including NIH Domain Repository partners, to enhance discoverability of their data. Vivli has recently been named a Generalist Repository as part of the NIH GREI initiative.

A primary objective of the GREI initiative is to supplement the NIH domain-specific data repositories in their data sharing.

The speakers shared case studies and a live demonstration of how the repositories work together to promote re-use.

This webinar covered how Vivli supports NIH-funded researchers in advance of the NIH Data Management and Sharing Policy that begins in January 2023.

The webinar was held on June 22nd, 2022.

VIEW THE RECORDING

Topics covered:

  • Introduction to Vivli and how it works to support NIH researchers in their data sharing efforts
  • Case studies of how Vivli works with NIH domain repositories such as ImmPORT to make their data more discoverable and promote reuse
  • Live demonstration of the Vivli platform
  • Q&A

Speakers include:
Ishwar Chandramouliswaran, NIH
Dawei Lin,
Ida Sim, Vivli and UCSF

Vivli Executive Director Dr. Rebecca Li Presenting at PHUSE Data Transparency Summer 2022 Event

Vivli’s Executive Director, Dr. Rebecca Li, will be presenting at the PHUSE Data Transparency Summer Event on June 28-30 alongside co-author Rebecca Sudlow, Roche. They will be presenting their abstract titled, “Accelerated sharing of COVID-19 Trial data via the Vivli Global Data Sharing Platform.”

Dr. Li will be speaking at the Wednesday, June 29, session.

Taking place virtually across three days, the Data Transparency Summer Event will run in bitesize sessions from 15:00 to 17:30 GMT (10:00AM to 12:30PM EDT) each day. Attendees can expect to hear thought-provoking presentations, panel discussions and Q&A sessions around each of the day’s topics.

 

 

Vivli to participate in NIH HEAL program webinar

Vivli’s Rebecca Li, Executive Director, and Julie Wood, Senior Director, will be featured as panelists for Open House for HEAL Data: Discussions with HEAL-Recommended Repositories on Thursday, May 19th from 1:00-2:00pm ET.

The NIH HEAL Initiative® aims to create a novel web platform connecting data from existing repositories to allow researchers to share, find, and analyze data, with the goal of collaboratively accelerating scientific discovery and developing solutions to address the national opioid and pain management public health crises. The over 600 awards involved in the initiative are producing data at rapid rates, and identifying the right repository to house HEAL data is essential for researchers to share, discover, and develop solutions to urgently put an end to these interconnected crises and save lives.

In this webinar, Vivli, alongside National Institute of Mental Health (NIMH) and Figshare, will share their insights during a panel discussion and Q&A led by Alex Waldrop of the HEAL Data Stewardship Group.

Waldrop will also share resources newly developed since last year’s Finding a Home for Your HEAL Data webinar, including an updated repository selection quiz, a curated list of recommended repositories, and an explanation of how choosing a repository intersects with preparing study-level metadata for the HEAL Platform.

We look forward to seeing you there!

Vivli Senior Director Julie Wood to Speak at Future-Proof Your Clinical Data Disclosure, Transparency and Plain Language Summaries Event

Clinical Trials- Informa Connect is hosting a hybrid event, “Future-Proof Your Clinical Data Disclosure, Transparency and Plain Language Summaries,” in June 2022. They will be featuring Vivli’s Senior Director, Julie Wood, in their series on Data Sharing Challenges in the presentation, “CASE STUDY: Sharing of Covid-19 Trials on Data Sharing Platforms.”

  • Julie Wood – Director of Strategy and Operations, Vivli
  • Julie G. Holtzople – Head of Clinical Transparency and Data Sharing, AstraZeneca

The presentation will focus on the challenges, opportunities and key learnings from the use of data sharing platforms; and progress and developments for multi-sponsor platform for sponsors and researchers. She will also answer the question: As data sharing becomes the norm, what should a sponsor consider when deciding on how to securely share clinical data?

View the Recording of Vivli’s 2021 Annual Meeting

“Creating Value by Working Together”

Vivli’s 2021 Annual Meeting was held on November 3rd. This meeting served as a chance to allow researchers, data contributors, and funders to discuss data sharing and its importance for furthering scientific discoveries.

View the Recording

View the Presentation

Agenda

Welcome remarks

Vivli Update for 2021, Rebecca Li, Executive Director, Vivli

Vivli proposals and their Impact on Scientific Discovery and Patient Care

  • Moderator, Murray Stewart, Vivli board member
  • Ricardo J.O. Ferreira, University of Coimbra
  • J.R. Meloro, Pfizer
  • Katherine Tucker, Roche

Funder Policies and Practice in Supporting Data Sharing

  • Moderator: Barbara Bierer, Multi-Regional Clinical Trials Center and Vivli co-founder
  • Ishwar Chandramouliswaran, NIH
  • Scott Kahn, Helmsley Charitable Trust
  • Thea Norman, Gates Foundation
  • Vasee Moorthy, World Health Organization
  • Yo Yehudi, Wellcome Trust

Creating Value–Building a Data Sharing Ecosystem

  • Moderator: Steve Kern, Gates Foundation
  • Philippe Guérin, IDDO
  • Rebecca Li, Vivli
  • Tetsuyuki Maruyama, ADDI
  • Andrew Morris, HDRUK

Wrap-up and Next steps

  • Rebecca Li, Executive Director, Vivli

Virtual Networking and informal discussions

 

Vivli Executive Director Dr. Rebecca Li to speak at Ropes & Gray and Mass Insight Global Partnerships – a Data Science Webinar

Ropes & Gray and Mass Insight Global Partnerships will be featuring Vivli’s Executive Director, Dr. Rebecca Li, on their upcoming webinar, “Accelerating Next Generation Developments in Cancer Care: A Collaborative Agenda for Data Innovations and Policy.”

Ropes & Gray and Mass Insight Global Partnerships aim to highlight the impact data sharing has on scientific developments, specifically oncology clinical trial recruitment. The webinar will provide valuable insight into the role of data innovations on clinical research and cancer care.

This webinar will take place Wednesday, September 22 12:00-1:30 pm (4:00-5:30 pm GMT).

To learn more about Dr. Li’s presentation and RSVP for the event reach out to RGEvents@ropesgray.com.

Upcoming Vivli Webinar: Sharing Academic Clinical Research Data

Sharing Academic Clinical Research Data: Top Academic Administrators discuss why and how institutions can provide support

This webinar provides an introduction to why data from academic clinical research should be shared and is aimed at academic trial teams and staff. The panelists will take part in a free-flowing conversation and Q&A to share their experiences and perspectives in setting up an institutional framework to support sharing academic clinical research trial data. Join us for a conversation discussing current initiatives, challenges to data sharing, and how they are being overcome at academic institutions.

The webinar will be held on June 18th at 9:00 am PT / 12:00 pm ET / 5:00 pm GMT.

Recording

Key topics to be covered:

  • The importance of sharing clinical research data
  • Creating an institutional framework for sharing data
  • Overcoming pain points to data sharing

Panelists include: 

Moderator: Ida Sim, Co-Founder, Vivli & Professor of Medicine, UCSF
Dan Ford, Vice Dean for Clinical Investigation, Johns Hopkins University
Susanna Naggie, Vice Dean for Clinical Research, Duke
Kim Serpico, Associate Director for IRB Operations, Harvard
Ara Tahmassian, Chief Research Compliance Officer, Harvard

 

Vivli Executive Director Dr. Rebecca Li to speak at Front Line Genomics Webinar

Front Line Genomics will be featuring Vivli’s Executive Director, Dr. Rebecca Li, in their webinar series COVID & Genomics ONLINE, on Wednesday May 5th in the webinar, “COVID-19 Data Sharing.”

Front Line Genomics is a genomics-focused media company, with a social mission to deliver the benefits of genomics to patients faster.

In this webinar, they will discuss how researchers across the globe mobilized to share COVID genomic data, and whether the coronavirus pandemic has changed our perceptions of data sharing moving forward. Dr. Li will speak directly on the topic, “Data sharing in a time of pandemic.”

Register for Dr. Li’s presentation, which takes place Wednesday, May 5th at 10:00am EDT and learn more here.