Vivli’s Executive Director, Dr. Rebecca Li, will be presenting at the PHUSE Data Transparency Summer Event on June 28-30 alongside co-author Rebecca Sudlow, Roche. They will be presenting their abstract titled, “Accelerated sharing of COVID-19 Trial data via the Vivli Global Data Sharing Platform.”
Dr. Li will be speaking at the Wednesday, June 29, session. Register today.
Taking place virtually across three days, the Data Transparency Summer Event will run in bitesize sessions from 15:00 to 17:30 GMT (10:00AM to 12:30PM EDT) each day. Attendees can expect to hear thought-provoking presentations, panel discussions and Q&A sessions around each of the day’s topics.
Vivli’s Rebecca Li, Executive Director, and Julie Wood, Senior Director, will be featured as panelists for Open House for HEAL Data: Discussions with HEAL-Recommended Repositories on Thursday, May 19th from 1:00-2:00pm ET.
The NIH HEAL Initiative® aims to create a novel web platform connecting data from existing repositories to allow researchers to share, find, and analyze data, with the goal of collaboratively accelerating scientific discovery and developing solutions to address the national opioid and pain management public health crises. The over 600 awards involved in the initiative are producing data at rapid rates, and identifying the right repository to house HEAL data is essential for researchers to share, discover, and develop solutions to urgently put an end to these interconnected crises and save lives.
In this webinar, Vivli, alongside National Institute of Mental Health (NIMH) and Figshare, will share their insights during a panel discussion and Q&A led by Alex Waldrop of the HEAL Data Stewardship Group.
Waldrop will also share resources newly developed since last year’s Finding a Home for Your HEAL Data webinar, including an updated repository selection quiz, a curated list of recommended repositories, and an explanation of how choosing a repository intersects with preparing study-level metadata for the HEAL Platform.
We look forward to seeing you there!
Clinical Trials- Informa Connect is hosting a hybrid event, “Future-Proof Your Clinical Data Disclosure, Transparency and Plain Language Summaries,” in June 2022. They will be featuring Vivli’s Senior Director, Julie Wood, in their series on Data Sharing Challenges in the presentation, “CASE STUDY: Sharing of Covid-19 Trials on Data Sharing Platforms.”
- Julie Wood – Director of Strategy and Operations, Vivli
- Julie G. Holtzople – Head of Clinical Transparency and Data Sharing, AstraZeneca
The presentation will focus on the challenges, opportunities and key learnings from the use of data sharing platforms; and progress and developments for multi-sponsor platform for sponsors and researchers. She will also answer the question: As data sharing becomes the norm, what should a sponsor consider when deciding on how to securely share clinical data?
Register for the session, which takes place on June 14, 2022 from 3:30pm – 4:00pm EDT.
“Creating Value by Working Together”
Vivli’s 2021 Annual Meeting was held on November 3rd. This meeting served as a chance to allow researchers, data contributors, and funders to discuss data sharing and its importance for furthering scientific discoveries.
View the Recording
View the Presentation
Vivli Update for 2021, Rebecca Li, Executive Director, Vivli
Vivli proposals and their Impact on Scientific Discovery and Patient Care
- Moderator, Murray Stewart, Vivli board member
- Ricardo J.O. Ferreira, University of Coimbra
- J.R. Meloro, Pfizer
- Katherine Tucker, Roche
Funder Policies and Practice in Supporting Data Sharing
- Moderator: Barbara Bierer, Multi-Regional Clinical Trials Center and Vivli co-founder
- Ishwar Chandramouliswaran, NIH
- Scott Kahn, Helmsley Charitable Trust
- Thea Norman, Gates Foundation
- Vasee Moorthy, World Health Organization
- Yo Yehudi, Wellcome Trust
Creating Value–Building a Data Sharing Ecosystem
- Moderator: Steve Kern, Gates Foundation
- Philippe Guérin, IDDO
- Rebecca Li, Vivli
- Tetsuyuki Maruyama, ADDI
- Andrew Morris, HDRUK
Wrap-up and Next steps
- Rebecca Li, Executive Director, Vivli
Virtual Networking and informal discussions
Ropes & Gray and Mass Insight Global Partnerships will be featuring Vivli’s Executive Director, Dr. Rebecca Li, on their upcoming webinar, “Accelerating Next Generation Developments in Cancer Care: A Collaborative Agenda for Data Innovations and Policy.”
Ropes & Gray and Mass Insight Global Partnerships aim to highlight the impact data sharing has on scientific developments, specifically oncology clinical trial recruitment. The webinar will provide valuable insight into the role of data innovations on clinical research and cancer care.
This webinar will take place Wednesday, September 22 12:00-1:30 pm (4:00-5:30 pm GMT).
To learn more about Dr. Li’s presentation and RSVP for the event reach out to RGEvents@ropesgray.com.
Sharing Academic Clinical Research Data: Top Academic Administrators discuss why and how institutions can provide support
This webinar provides an introduction to why data from academic clinical research should be shared and is aimed at academic trial teams and staff. The panelists will take part in a free-flowing conversation and Q&A to share their experiences and perspectives in setting up an institutional framework to support sharing academic clinical research trial data. Join us for a conversation discussing current initiatives, challenges to data sharing, and how they are being overcome at academic institutions.
The webinar will be held on June 18th at 9:00 am PT / 12:00 pm ET / 5:00 pm GMT.
Register here today!
Key topics to be covered:
- The importance of sharing clinical research data
- Creating an institutional framework for sharing data
- Overcoming pain points to data sharing
Moderator: Ida Sim, Co-Founder, Vivli & Professor of Medicine, UCSF
Dan Ford, Vice Dean for Clinical Investigation, Johns Hopkins University
Susanna Naggie, Vice Dean for Clinical Research, Duke
Kim Serpico, Associate Director for IRB Operations, Harvard
Ara Tahmassian, Chief Research Compliance Officer, Harvard
Front Line Genomics will be featuring Vivli’s Executive Director, Dr. Rebecca Li, in their webinar series COVID & Genomics ONLINE, on Wednesday May 5th in the webinar, “COVID-19 Data Sharing.”
Front Line Genomics is a genomics-focused media company, with a social mission to deliver the benefits of genomics to patients faster.
In this webinar, they will discuss how researchers across the globe mobilized to share COVID genomic data, and whether the coronavirus pandemic has changed our perceptions of data sharing moving forward. Dr. Li will speak directly on the topic, “Data sharing in a time of pandemic.”
Register for Dr. Li’s presentation, which takes place Wednesday, May 5th at 10:00am EDT and learn more here.
Health Research Board Trials Methodology Research Network (HRB TMRN) will be featuring Vivli’s Executive Director, Dr. Rebecca Li, on their upcoming webinar, “Implementation of Data Sharing platforms and How Researchers are Utilizing these Platforms to Further their Research.”
The HRB-Trials Methodology Research Network (HRB-TMRN) is a collaborative initiative between a number of Irish and international higher education institutes and methodology centers.
Its’ mission is to strengthen the methodology and reporting of trials in health and social care in Ireland so that they become more relevant, accessible and influential for patients and other service users, practitioners, policy makers and the public. This is achieved through a program of work relating to the methodology of trials and focused on (i) support (ii) training and education (iii) research and innovation and (iv) public engagement.
Register for Dr. Li’s presentation, which takes place Monday, April 12th 9:00-10:00 EDT (2:00-3:00pm GMT), and learn more here.
InformaConnect will be combining their EU and US events into one global virtual event this year: the Clinical Data Disclosure, Transparency & Plain Language Summaries, May 10th – May 12th. Participants can expect to learn from thought-leaders and innovators across the industry in this three-day event that covers topics:
- Global clinical transparency regulations and data sharing
- Harmonization, data sharing requirements and COVID-19 learnings
- Plain language summaries, dissemination strategies and publications
Registration is free for patients and clinical investigators, and members of pharma companies, biotech companies, medical device, government body, non-profit and academic institutions.
Dr. Li be participating in the panel, “Balancing Sharing Results and Data Whilst Protecting Participants Data Privacy,” on May 10th and Julie Wood will be a part of the presentation, “Considerations for sponsors when using a Data Sharing Platform – Vivli as a case study,” on May 11th. Register today and learn more about other sessions in the conference here.
Join Vivli for a webinar to learn about how Machine Learning (ML) research approaches may be used in the context of clinical data re-use.
These approaches raise important questions and opportunities for data sharing. Panelists will provide an overview of machine learning including case studies from Vivli (a global data sharing and analytics platform) where we have received requests from investigators requesting to obtain anonymized data to utilize machine learning approaches to conduct secondary analyses of data. Challenges and legal issues will be presented, and panelists will reflect on opportunities to work together on these issues to continue to move forward towards scientific discovery.
Join us as we explore where ML fits in with the future of secondary analysis and how we can optimize its approach.
The webinar will be held on March 23rd at 9:00 am PT / 12:00 pm ET / 5:00 pm GMT.
Register here today!
Key topics to be covered:
- Machine Learning research approaches, and its similarity and differences to other statistical methods
- Legal issues around ML and how they can be overcome
- Machine Learning case studies
Ida Sim, UCSF and Vivli
Abigail Gregor, Ropes & Gray
Daniel Freshmen, Ropes & Gray